Williamson Ruth, Atkin Helen, Wood Oliver, Thomson Louise, Whitehead Phillip
Leeds and York Partnership NHS Foundation Trust, Leeds, UK.
Northumbria University, Newcastle upon Tyne, UK.
Br J Occup Ther. 2023 Jun;86(6):400-412. doi: 10.1177/03080226231165374. Epub 2023 Apr 12.
The () recently introduced a requirement for authors to report Patient and Public Involvement (PPI). The public and people using health and social care services have knowledge which holds value in research beyond use as data. Involvement in research process can help shape the generation of critical evidence informing policies and practices; however, little is known about prior PPI reporting.
A scoping review was conducted identifying public involvement in research published in between 2015 and 2021. An electronic search was conducted using key terms. Data were extracted in duplicate or triplicate using GRIPP2 short form checklist.
Twenty-five studies were identified which reported public involvement, this was 6% of research published in . Patients and public were mainly involved in study steering or advisory groups and their primary activity was developing or piloting study materials. There were low levels of reporting the aim, outcome and critical reflections on involvement activities. Main approaches to involvement were consultation (37%) and collaboration (30%). There was inconsistent use of language and terms.
Consistent PPI reporting using Guidance for Reporting Involvement of Patients and the Public (GRIPP 2), critical reflection of impact of PPI, acknowledgement of public contributors, future scoping review investigating impact of PPI authorship guidelines.
（）最近对作者提出了报告患者和公众参与（PPI）的要求。公众以及使用卫生和社会护理服务的人群所拥有的知识，在研究中的价值不仅仅是作为数据使用。参与研究过程有助于塑造关键证据的产生，为政策和实践提供信息；然而，关于之前PPI报告的情况却知之甚少。
进行了一项范围综述，以确定2015年至2021年间发表的研究中的公众参与情况。使用关键词进行电子检索。使用GRIPP2简表清单一式两份或一式三份提取数据。
共确定了25项报告公众参与情况的研究，占发表研究的6%。患者和公众主要参与研究指导或咨询小组，其主要活动是开发或试用研究材料。对参与活动的目的、结果和批判性反思的报告水平较低。主要的参与方式是咨询（37%）和合作（30%）。语言和术语的使用不一致。
使用《报告患者和公众参与指南》（GRIPP 2）进行一致的PPI报告，对PPI的影响进行批判性反思，认可公众贡献者，未来进行范围综述以调查PPI作者指南的影响。
