Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Atlanta, Georgia.
National Institutes of Health, Eunice Kennedy Shriver National Institute of Child Health and Human Development, Bethesda, Maryland.
J Womens Health (Larchmt). 2020 Mar;29(3):291-296. doi: 10.1089/jwh.2020.8309.
Many reproductive-aged women with a disability can achieve successful healthy pregnancies; however, they may face challenges accessing prenatal and postpartum care and finding providers who are knowledgeable about their specific condition. Depending on the nature of the disability, some women may also be at increased risk for adverse maternal and infant outcomes such as pre-eclampsia, infection, anemia, primary cesarean delivery, or preterm birth. Population-based data are needed to better understand the pregnancy and postpartum experiences of women living with disability. The National Institutes of Health and the Centers for Disease Control and Prevention (CDC) collaborated to address these data gaps by leveraging CDC's Pregnancy Risk Assessment Monitoring System (PRAMS) to gather information about disability among women who have had a recent live birth. Data collection began in 2019. Information gathered through PRAMS can be used to guide the development of clinical practices guidelines, intervention programs, and other initiatives of federal, state, and local agencies to improve services and the health of women of reproductive age living with disability.
许多有生育能力的残疾女性可以成功怀上健康的宝宝；然而，她们在获得产前和产后护理以及寻找了解其特定病情的医生方面可能会面临挑战。根据残疾的性质，一些女性可能面临更高的不良母婴结局风险，如子痫前期、感染、贫血、初次剖宫产或早产。需要基于人群的数据来更好地了解残疾女性的妊娠和产后经历。美国国立卫生研究院和疾病控制与预防中心（CDC）合作，通过利用 CDC 的妊娠风险评估监测系统（PRAMS）来收集最近分娩的残疾女性的相关信息，以此来解决这些数据空白。数据收集始于 2019 年。通过 PRAMS 收集的信息可用于指导制定临床实践指南、干预计划以及联邦、州和地方机构的其他举措，以改善服务并提高有生育能力的残疾女性的健康水平。
