遗传歧视：《遗传信息非歧视法案》对实践和研究的影响。

Genetic Discrimination: The Genetic Information Nondiscrimination Act's Impact on Practice and Research.

机构信息

University of Rochester.

Dana-Farber Cancer Institute.

出版信息

Clin J Oncol Nurs. 2020 Apr 1;24(2):135-137. doi: 10.1188/20.CJON.135-137.

DOI:10.1188/20.CJON.135-137

PMID:32196007

Abstract

The Genetic Information Nondiscrimination Act of 2008 (GINA) provides federal safeguards to prohibit employer or insurance discrimination based on personal or familial genetic information or conditions. Awareness of the implications of genetic testing in individuals and families and of state and federal legislation in place for their protection is an essential component of oncology nursing practice. This article discusses the critical role of the oncology nurse in interacting with and providing information about GINA to patients in a cancer care setting engaged in genetic assessment.

摘要

2008 年《遗传信息非歧视法案》（GINA）提供了联邦保障措施，禁止雇主或保险公司基于个人或家族的遗传信息或状况进行歧视。了解遗传检测对个人和家庭的影响，以及为保护他们而制定的州和联邦立法，是肿瘤护理实践的一个重要组成部分。本文讨论了肿瘤护士在癌症护理环境中与参与遗传评估的患者互动并提供有关 GINA 的信息方面的关键作用。