Holzer Ralf J, Dayton Jeffrey D
NewYork-Presbyterian Komansky Children's Hospital, New York, USA.
Weill Cornell Medicine, New York, USA.
Pediatr Cardiol. 2020 Mar;41(3):443-458. doi: 10.1007/s00246-020-02300-7. Epub 2020 Mar 20.
Small study sizes are a limiting factor in assessing outcome measures in pediatric cardiology. It is even more difficult to assess the outcomes of congenital catheterizations where the sample sizes are even smaller, particularly on a individual institutional level. The creation of multicenter registries is a method by which investigators can pool data to better assess quality and outcome measures of these procedures. No registry is perfect with several being available today, each with its own strengths and weaknesses. In addition, there are a multitude of methods currently used to assess quality and outcomes from the data contained in these registries, each having its own limitations as well. Nonetheless, multicenter registrities remain one of the best available options to improve the quality of care for pediatric interventional cardiac catheterization. Below, we provide an overview of the current state of quality assessment/improvement in pediatric interventional cardiology including a review of the available registrities and the metrics used to measure quality of care and outcomes.
小型研究规模是评估儿科心脏病学结果指标的一个限制因素。在评估先天性导管插入术的结果时更加困难，因为其样本量更小，尤其是在单个机构层面。建立多中心登记系统是一种方法，研究者可以通过该方法汇总数据，以更好地评估这些手术的质量和结果指标。目前没有一个登记系统是完美的，如今有好几个登记系统可供使用，每个都有其优缺点。此外，目前有多种方法用于评估这些登记系统中所包含数据的质量和结果，每种方法也都有其局限性。尽管如此，多中心登记系统仍然是提高儿科介入性心导管插入术护理质量的最佳可用选择之一。下面，我们概述了儿科介入性心脏病学质量评估/改进的现状，包括对可用登记系统以及用于衡量护理质量和结果的指标的综述。
