Tortorella C, Solaro C, Annovazzi P, Boffa L, Buscarinu M C, Buttari F, Calabrese M, Cavalla P, Cocco E, Cordioli C, De Luca G, Di Filippo M, Fantozzi R, Ferraro D, Gajofatto A, Gallo A, Lanzillo R, Laroni A, Fermo S Lo, Malucchi S, Maniscalco G T, Moccia M, Nociti V, Paolicelli D, Pesci I, Prosperini L, Ragonese P, Tomassini V, Clerici V L A Torri, Rodegher M, Gherardi M, Gasperini C
Department of Neurosciences, San Camillo Forlanini Hospital, Rome, Italy.
Department of Rehabilitation, Mons L Novarese Hospital, Moncrivello, Italy.
Neurol Sci. 2020 Aug;41(8):2249-2253. doi: 10.1007/s10072-020-04339-z. Epub 2020 Apr 2.
In the last years, change in multiple sclerosis (MS) therapeutic scenario has highlighted the need for an improved doctor-patient communication in advance of treatment initiation in order to allow patient's empowerment in the decision-making process. AIMS: The aims of our project were to review the strategies used by Italian MS specialists to inform patients about treatment options and to design a multicentre shared document that homogenizes the information about disease-modifying treatment (DMTs) and the procedure of taking informed consent in clinical practice. RESULTS: The new resource, obtained by consensus among 31 neurologists from 27 MS Centres in Italy with the supervision of a medico-legal advisor, received the aegis of Italian Neurological Society (SIN) and constitutes a step toward a standardized decision process around DMTs in MS.
在过去几年中，多发性硬化症（MS）治疗方案的变化凸显了在开始治疗前改善医患沟通的必要性，以便让患者在决策过程中增强自主权。目的：我们项目的目的是回顾意大利MS专家用于向患者介绍治疗选择的策略，并设计一份多中心共享文件，使临床实践中关于疾病修正治疗（DMTs）的信息以及获取知情同意的程序标准化。结果：在意大利27个MS中心的31名神经科医生在一名法医学顾问的监督下达成共识后获得的这一新资源，得到了意大利神经学会（SIN）的支持，是迈向MS中DMTs标准化决策过程的一步。
