Oklahoma State University Center for Health Sciences, US.
Department of Obstetrics and Gynecology, Oklahoma State University Medical Center, US.
Breast Dis. 2020;39(2):85-90. doi: 10.3233/BD-200445.
Breast cancer is the most common cancer in women, affecting approximately 1 in 8 women worldwide. Additionally, it is either the most or second-most lethal cancer depending on ethnicity. Many women and concerned family members turn to the internet for information regarding the signs, symptoms, diagnosis and treatment of this life-altering condition. We sought to objectively evaluate the quality of the information available on YouTube concerning breast cancer.
We searched YouTube for videos relating to breast cancer. We included videos that were less than 20 minutes in length, were in the top 200 for most views and were available in English, either subtitled or narrated. Videos were independently and blindly scored using a standardized scoring form. Possible scores ranged from negative infinity to 25.5 with one point being deducted for each misleading statement or claim.
After exclusions, 133 videos in our sample were evaluated. Out of a possible 25.5 points, the true mean was 3.90 with a standard deviation of 1.38. There were only 30 videos (22.5%) that scored more than 7 points. 12 (9.0%) videos scored 0 points or fewer. 12 (9.0%) of the videos in our sample contained at least one misleading statement with 9 of those contained multiple misleading statements with some videos having up to 10 such statements.
While YouTube is an important source of information regarding breast cancer, few videos contain a significant amount of quality information and many of the videos contain false or misleading statements. In an area where patients are often scared and searching for answers, there is a significant need for more high-quality videos to educate patients and dispel myths and pseudoscience.
乳腺癌是女性最常见的癌症，全球约有 1/8 的女性受到影响。此外，根据种族的不同，乳腺癌或是致死率最高的癌症，或是第二大致死癌症。许多女性及其家属会在互联网上搜索有关乳腺癌的体征、症状、诊断和治疗的信息。我们旨在客观评估有关乳腺癌的 YouTube 上信息的质量。
我们在 YouTube 上搜索与乳腺癌相关的视频。我们纳入了时长少于 20 分钟、浏览量在前 200 名内且提供英语字幕或旁白的视频。我们使用标准化评分表独立、盲法地对视频进行评分。可能的分数范围从负无穷到 25.5，每有一个误导性陈述或说法就会扣一分。
经过排除，我们的样本中有 133 个视频进行了评估。在可能的 25.5 分中，真实平均值为 3.90，标准差为 1.38。只有 30 个视频（22.5%）得分超过 7 分。12 个视频（9.0%）得分为 0 分或更低。我们样本中的 12 个视频（9.0%）至少包含一个误导性陈述，其中 9 个视频包含多个误导性陈述，有些视频甚至多达 10 个这样的陈述。
虽然 YouTube 是有关乳腺癌信息的重要来源，但很少有视频包含大量高质量的信息，许多视频包含错误或误导性的陈述。在患者通常感到恐惧并寻求答案的领域，非常需要更多高质量的视频来教育患者并消除谣言和伪科学。
