描述乳腺癌患者的信息需求和信息寻求行为。
Characterizing informational needs and information seeking behavior of patients with breast cancer.
机构信息
University of Colorado School of Medicine, 13001 E 17th Pl, Aurora, CO, USA.
Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
出版信息
Am J Surg. 2024 Jan;227:100-105. doi: 10.1016/j.amjsurg.2023.09.047. Epub 2023 Oct 8.
BACKGROUND
Appropriate information may facilitate adjustment to cancer diagnoses. Our study aims to characterize informational satisfaction in breast cancer patients and assess resources used by patients to gain information.
METHODS
Newly diagnosed Stage 0-III breast cancer patients seen at an academic medical center between May and September 2020 received questionnaires assessing information satisfaction. Patients indicated resources used to obtain information along with satisfaction with information received in various topics. A subset of questionnaire respondents completed semi-structured interviews.
RESULTS
Fifty-two (35 %) patients completed the questionnaire. Patients received information from physicians (96 %), the internet (81 %), nurses (79 %), and fellow breast cancer patients (54 %). Interview participants preferred receiving information from providers when making medical decisions but found patient forums and social media to be important adjuncts for receiving information.
CONCLUSION
Patients are satisfied with information received about diagnosis and treatment, but finances, sexual health, and fertility are less frequently discussed.
背景
适当的信息可能有助于患者适应癌症诊断。本研究旨在描述乳腺癌患者的信息满意度，并评估患者获取信息所使用的资源。
方法
2020 年 5 月至 9 月期间在一家学术医疗中心就诊的新诊断为 0-III 期乳腺癌患者接受了评估信息满意度的问卷。患者指出了获取信息所使用的资源，以及在各种主题中对所收到信息的满意度。部分问卷受访者完成了半结构化访谈。
结果
52 名（35%）患者完成了问卷。患者从医生（96%）、互联网（81%）、护士（79%）和乳腺癌患者（54%）那里获得信息。访谈参与者在做出医疗决策时更喜欢从提供者那里获得信息，但发现患者论坛和社交媒体是获取信息的重要辅助手段。
结论
患者对诊断和治疗方面的信息感到满意，但财务状况、性健康和生育问题讨论较少。
Zotero 插件