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肝硬化支持性需求评估工具(SNAC)的开发与评估

Development and Evaluation of the Supportive Needs Assessment Tool for Cirrhosis (SNAC).

作者信息

Valery Patricia C, Bernardes Christina M, Stuart Katherine A, Hartel Gunter F, McPhail Steven M, Skoien Richard, Rahman Tony, Clark Paul J, Horsfall Leigh U, Hayward Kelly L, Gupta Rohit, Powell Elizabeth E

机构信息

QIMR Berghofer Medical Research Institute, Herston, QLD, Australia.

Centre for Liver Disease Research, Translational Research Institute, Faculty of Medicine, The University of Queensland, Brisbane, QLD, Australia.

出版信息

Patient Prefer Adherence. 2020 Mar 18;14:599-611. doi: 10.2147/PPA.S236818. eCollection 2020.

Abstract

BACKGROUND

We report the development and psychometric testing of a Supportive Needs Assessment tool for Cirrhosis (SNAC).

METHODS

The 50-item SNAC was administered to patients (n=465) diagnosed with cirrhosis recruited from five metropolitan hospitals in Queensland, Australia. Items were assessed for ceiling and floor effects, and exploratory factor analysis was used to assess the factor structure. Identified factors were assessed for internal consistency and convergent validity to validated psychosocial tools.

RESULTS

Exploratory factor analysis identified 4 factors (39 items), which together accounted for 49.2% of the total variance. The 39-item SNAC met the requirements of a needs assessment tool and identified a range of needs important to patients with cirrhosis that were grouped in four subscales: "Psychosocial issues", "Practical and physical needs", "Information needs", and "Lifestyle changes". Cronbach's alpha values for the four subscales ranged from 0.64 to 0.92. Convergent validity was supported by a strong correlation between the total SNAC score and that of the Chronic Liver Disease Questionnaire (CLDQ; Spearman rho -0.68; p<0.001), and moderate correlations with the Distress Thermometer (Spearman rho 0.53; p<0.001) and seven subscales of a generic health-related quality of life instrument (Short Form 36; Spearman rho ranged from -0.48 to -0.57; p<0.001). The SNAC discriminated patient groups with respect to sex (p=0.013), age group (p<0.001), and hospital admission status (admitted vs not; p<0.001).

CONCLUSION

These data provide initial evidence for the validity and reliability of the SNAC, an instrument designed to measure type and amount of perceived unmet practical and psychological needs of people diagnosed with cirrhosis.

摘要

背景

我们报告了一种肝硬化支持需求评估工具(SNAC)的开发及心理测量测试。

方法

对从澳大利亚昆士兰州五家大都市医院招募的465例被诊断为肝硬化的患者进行了50项SNAC测试。评估项目的天花板效应和地板效应,并使用探索性因素分析来评估因素结构。对识别出的因素进行内部一致性和与已验证的心理社会工具的收敛效度评估。

结果

探索性因素分析识别出4个因素(39个项目),共占总方差的49.2%。39项SNAC满足需求评估工具的要求,并识别出一系列对肝硬化患者重要的需求,这些需求分为四个子量表:“心理社会问题”、“实际和身体需求”、“信息需求”和“生活方式改变”。四个子量表的克朗巴哈α值范围为0.64至0.92。SNAC总分与慢性肝病问卷(CLDQ;斯皮尔曼相关系数-0.68;p<0.001)之间的强相关性支持了收敛效度,与苦恼温度计(斯皮尔曼相关系数0.53;p<0.001)以及通用健康相关生活质量工具的七个子量表(简短形式36;斯皮尔曼相关系数范围为-0.48至-0.57;p<0.001)之间存在中度相关性。SNAC在性别(p=0.013)、年龄组(p<0.001)和住院状态(入院与否;p<0.001)方面区分了患者组。

结论

这些数据为SNAC的效度和信度提供了初步证据,SNAC是一种旨在测量被诊断为肝硬化的人所感知到的未满足的实际和心理需求的类型及数量的工具。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f247/7094148/eeea784cb117/PPA-14-599-g0001.jpg

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