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九个发展中国家肿瘤生育实践的障碍与机遇以及新兴的肿瘤生育专业参与网络

Barriers and Opportunities of Oncofertility Practice in Nine Developing Countries and the Emerging Oncofertility Professional Engagement Network.

作者信息

Salama Mahmoud, Ataman-Millhouse Lauren, Sobral Fabio, Terrado Guillermo, Scarella Anibal, Bourlon Maria T, Adiga Satish Kumar, Udupa Karthik S, Mahajan Nalini, Patil Madhuri, Venter Chris, Demetriou Georgia, Quintana Ramiro, Rodriguez Gabriela, Quintana Tomas, Viale Luz, Bonilla Yuly Andrea Remolina, Noguera July Andrea Russi, Velásquez Juan Carlos Velásquez, Pineda Jennifer Ivonne Dominguez, Aldecoa Mario Daniel Castro, Javed Murid, Al Sufyan Hamad, Daniels Nonso, Ogunmokun Adegbite A, Woodruff Teresa K

机构信息

Northwestern University, Chicago, IL.

National Research Center, Cairo, Egypt.

出版信息

J Glob Oncol. 2018 Dec 27;4. doi: 10.1200/JGO.18.00180. eCollection 2018.

Abstract

PURPOSE

Oncofertility practice continues to grow in developing countries despite the lack of health care services, especially those related to cancer care. The purpose of this study is to further explore oncofertility practice in these countries and identify opportunities for field-wide coalescence.

METHODS

We generated a survey to learn more about oncofertility practice in nine developing countries within our Oncofertility Consortium Global Partners Network-Mexico, Colombia, Guatemala, Argentina, Chile, Nigeria, South Africa, Saudi Arabia, and India. Their responses were collected, reviewed, and discussed.

RESULTS

Surveyed centers from the nine developing countries continue to experience a similar set of common challenges, including a lack of awareness among providers and patients, cultural and religious constraints, lack of insurance coverage and funding to help to support oncofertility programs, and high out-of-pocket costs for patients. Despite these barriers, many opportunities exist and there is great potential for the future.

CONCLUSION

The current need is to unify the new technologies and best practices that emerge from rural communities and developing countries with those in large metropolitan cities, both domestically (US based) and abroad, into a functional unit: the Oncofertility Professional Engagement Network. The Oncofertility Professional Engagement Network will bridge the gap between domestic and international programs to establish a strong global network in which members share resources, methodologies and experiences and further build cultural competency.

摘要

目的

尽管缺乏医疗保健服务,尤其是与癌症治疗相关的服务,但发展中国家的肿瘤生育实践仍在不断发展。本研究的目的是进一步探索这些国家的肿瘤生育实践,并确定全领域联合的机会。

方法

我们开展了一项调查,以了解更多关于我们肿瘤生育联盟全球合作伙伴网络中九个发展中国家(墨西哥、哥伦比亚、危地马拉、阿根廷、智利、尼日利亚、南非、沙特阿拉伯和印度)的肿瘤生育实践情况。收集、审查并讨论了他们的回复。

结果

来自这九个发展中国家的受访中心继续面临一系列类似的共同挑战,包括医疗服务提供者和患者缺乏认识、文化和宗教限制、缺乏保险覆盖和资金来支持肿瘤生育项目,以及患者自付费用高昂。尽管存在这些障碍,但仍有许多机会,未来潜力巨大。

结论

当前的需求是将农村社区和发展中国家出现的新技术和最佳实践与美国国内和国外大城市的新技术和最佳实践整合为一个功能单元:肿瘤生育专业参与网络。肿瘤生育专业参与网络将弥合国内和国际项目之间的差距,建立一个强大的全球网络,成员在其中共享资源、方法和经验,并进一步培养文化能力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/762e/7853876/f49c55cd2082/go-6-jgo.18.00180-g001.jpg

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