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运用“心连心”卡牌游戏识别中国癌症患者的临终选择。

Identifying End-of-Life Preferences Among Chinese Patients With Cancer Using the Heart to Heart Card Game.

机构信息

School of Health Sciences, 12390Wuhan University, Wuhan, Hubei province, China.

Department of Chemotherapy and Radiation Therapy, Zhongnan Hospital, 12390Wuhan University, Wuhan, Hubei province, China.

出版信息

Am J Hosp Palliat Care. 2021 Jan;38(1):62-67. doi: 10.1177/1049909120917361. Epub 2020 Apr 9.

Abstract

BACKGROUND

Understanding the preferences for end-of-life (EOL) care is imperative in providing quality care to patients with life-threatening illness. However, it is difficult for patients, families, and health-care providers to initiate EOL conversations in China. An easy-to-use tool that could help health-care providers initiate EOL discussions is the Heart to Heart Card Game (HHCG), originally designed for Chinese Americans.

OBJECTIVE

To evaluate the EOL preferences among Chinese patients with cancer using the HHCG.

METHODS

We conducted a descriptive study to assess EOL preferences using HHCG among patients at the oncology chemoradiotherapy department of a Chinese tertiary hospital.

RESULTS

We recruited 58 patients in total of which 40 (69%) patients completed HHCG. The most frequently selected card was "I want my family to get along," followed by "I don't want to be a burden to my family," and "I want to maintain my dignity." Among the 3 cards selected, social needs were rated as the most important (36.7%), followed by spiritual needs (35.8%), physical needs (20.0%), and financial needs (7.5%). The evaluation of the HHCG revealed that more than 70% of the participants highly valued HHCG.

CONCLUSION

The HHCG can be used as a communication tool to encourage EOL discussions between cancer patients and health-care providers in China. Moreover, Chinese patients with cancer attach significant importance to their family and maintaining dignity at the EOL.

摘要

背景

了解临终关怀(EOL)的偏好对于为患有危及生命疾病的患者提供优质护理至关重要。然而,在中国,患者、家属和医疗保健提供者很难开始进行 EOL 对话。一种易于使用的工具,可以帮助医疗保健提供者发起 EOL 讨论,就是最初为美籍华人设计的“心连心卡牌游戏”(HHCG)。

目的

使用 HHCG 评估中国癌症患者的 EOL 偏好。

方法

我们进行了一项描述性研究,使用 HHCG 评估中国一家三级医院肿瘤放化疗科患者的 EOL 偏好。

结果

我们共招募了 58 名患者,其中 40 名(69%)患者完成了 HHCG。最常选择的卡牌是“我希望我的家人和睦相处”,其次是“我不想成为家人的负担”和“我希望保持尊严”。在所选择的 3 张卡牌中,社会需求被评为最重要的(36.7%),其次是精神需求(35.8%)、身体需求(20.0%)和经济需求(7.5%)。对 HHCG 的评估表明,超过 70%的参与者高度重视 HHCG。

结论

HHCG 可以用作一种沟通工具,鼓励中国癌症患者与医疗保健提供者之间进行 EOL 讨论。此外,中国癌症患者非常重视家庭和临终时的尊严。

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