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儿科肿瘤学提供者对早期纳入儿科姑息治疗的看法。

Paediatric oncology providers' perspectives on early integration of paediatric palliative care.

机构信息

Clinical Nurse Specialist, Children's Cancer Institute, American University of Beirut Medical Center, Lebanon.

Professor, Azusa Pacific University, CA, USA.

出版信息

Int J Palliat Nurs. 2020 Mar 2;26(3):100-109. doi: 10.12968/ijpn.2020.26.3.100.

Abstract

BACKGROUND

Healthcare providers' perceptions of palliative care in children with cancer influence care management, specifically that of its early integration. Thus, it is crucial to understand the perspectives of the providers on early integration of palliative care so that measures to create informed care decisions are based on reconciling their views.

AIMS

To explore the perceptions of paediatric oncology providers at the Children's Cancer Institute (CCI) in Lebanon regarding the integration of early paediatric palliative care (PPC) in the management of children with cancer.

METHODS

A qualitative descriptive research design with focus groups was used in a leading paediatric oncology setting.

FINDINGS

The thematic analysis yielded four themes: (1) healthcare providers understood palliative care as pain relief and psychological support mainly at the end of life; (2) the timing of integrating PPC is linked to end of life, advanced disease or treatment failure; (3) interdisciplinary collaboration is important for addressing patients' and families' needs effectively; and (4) communication with the child and family is one of the most difficult aspects of integrating PPC.

CONCLUSION

This study demonstrated the perceptions of healthcare providers about early palliative care in paediatric oncology in Lebanon. It also highlighted the importance of interdisciplinary collaboration and effective communication with the child and family for better management of PPC.

摘要

背景

医疗保健提供者对癌症儿童姑息治疗的看法影响着护理管理,特别是早期整合。因此,了解提供者对姑息治疗早期整合的看法至关重要,以便基于协调他们的观点来制定知情护理决策。

目的

探讨黎巴嫩儿童癌症研究所(CCI)的儿科肿瘤学提供者对癌症儿童管理中早期儿科姑息治疗(PPC)整合的看法。

方法

在一家领先的儿科肿瘤学环境中使用了定性描述性研究设计和焦点小组。

结果

主题分析产生了四个主题:(1)医疗保健提供者将姑息治疗理解为主要在生命末期的疼痛缓解和心理支持;(2)整合 PPC 的时间与生命末期、晚期疾病或治疗失败有关;(3)跨学科合作对于有效满足患者和家庭的需求很重要;(4)与孩子和家庭的沟通是整合 PPC 最困难的方面之一。

结论

本研究展示了黎巴嫩儿科肿瘤学中医疗保健提供者对早期姑息治疗的看法。它还强调了跨学科合作和与孩子及家庭进行有效沟通对更好地管理 PPC 的重要性。

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