Spruit Jessica L, Bell Cynthia J, Toly Valerie B, Prince-Paul Maryjo
1 Children's Hospital of Michigan, Detroit, MI, USA.
2 Wayne State University, Detroit, MI, USA.
J Pediatr Oncol Nurs. 2018 Jul/Aug;35(4):247-256. doi: 10.1177/1043454218764885. Epub 2018 Apr 4.
The care of pediatric patients with cancer and their families is complex and rapidly evolving. Despite significant advances in outcomes, symptoms of the disease and complications of therapy continue to cause suffering that may improve with the involvement of pediatric palliative care (PPC) services. This descriptive study responds to the observation of great variability in PPC utilization within pediatric oncology. Data collected from 156 health care professionals (nurses, advanced practice professionals, and physicians) from a statewide hematology alliance evaluates the knowledge, beliefs, and perceived barriers to PPC involvement. Data analysis reveals significant variability when comparing respondents from professional roles and practice environments. Despite progress in PPC availability, care delivery remains incongruent with current recommendations. Knowledge gained from this study emphasizes the important role for all health care providers in advocating for support of PPC programs, educating the public, and committing to intentional involvement of PPC services while caring for pediatric oncology patients.
对患有癌症的儿科患者及其家庭的护理复杂且发展迅速。尽管在治疗结果方面取得了重大进展，但疾病症状和治疗并发症仍在造成痛苦，而儿科姑息治疗（PPC）服务的介入可能会改善这种情况。这项描述性研究回应了儿科肿瘤学中PPC使用存在巨大差异的观察结果。从全州血液学联盟的156名医疗保健专业人员（护士、高级执业专业人员和医生）收集的数据，评估了对PPC介入的知识、信念和感知障碍。数据分析显示，在比较来自不同专业角色和实践环境的受访者时，存在显著差异。尽管PPC服务的可及性有所进步，但护理提供仍与当前建议不一致。从这项研究中获得的知识强调了所有医疗保健提供者在倡导支持PPC项目、教育公众以及在照顾儿科肿瘤患者时致力于有意介入PPC服务方面的重要作用。
