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人生艰难,然后你就死了:英国无家可归者的临终优先事项。

Life's hard and then you die: the end-of-life priorities of people experiencing homelessness in the UK.

机构信息

Advanced Clinical Practitioner, University of Worcester, UK.

Associate Professor of Nursing, University of Worcester, UK.

出版信息

Int J Palliat Nurs. 2020 Mar 2;26(3):120-132. doi: 10.12968/ijpn.2020.26.3.120.

DOI:10.12968/ijpn.2020.26.3.120
PMID:32275478
Abstract

BACKGROUND

People experiencing homelessness often die young and without adequate support. In the UK, they fail to access palliative care services and their end-of-life priorities remain poorly understood.

AIMS

To explore the end-of-life concerns, fears, preferences and priorities of a sample of people experiencing homelessness in the UK.

METHODS

This is an interpretive phenomenology. Data collected through semi-structured, audio-recorded, face-to-face interviews with 21 homeless participants in the UK were analysed iteratively using thematic analysis. Findings have been interpreted through the lens of Merleau-Ponty's philosophy.

RESULTS

Eight themes are reported: spiritual concerns; practical concerns; fear of needing care; fear of being forgotten; preference for dying suddenly; preference for being somewhere comfortable where people know me; prioritising autonomy and self-determination; and prioritising authenticity.

CONCLUSION

A strengths-based, trauma-informed, person-centred, collaborative 'compassionate community' approach to care is recommended for people experiencing homelessness at end of life.

摘要

背景

无家可归者往往英年早逝,且得不到充分的支持。在英国,他们无法获得姑息治疗服务,其临终关怀的优先事项也未得到充分理解。

目的

探讨英国一组无家可归者的临终关怀关注点、恐惧、偏好和优先事项。

方法

这是一种解释性现象学研究。通过在英国对 21 名无家可归者进行半结构化、录音、面对面访谈收集数据,使用主题分析方法进行迭代分析。研究结果通过梅洛-庞蒂的哲学进行解释。

结果

报告了八个主题:精神关怀;实际问题;对需要护理的恐惧;害怕被遗忘;希望突然离世;希望在舒适的地方,人们知道我;优先考虑自主权和自我决定;以及优先考虑真实性。

结论

建议在临终关怀时为无家可归者提供以优势为基础、以创伤为导向、以人为本、协作的“富有同情心的社区”方法。

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