Song John, Ratner Edward R, Bartels Dianne M, Alderton Lucy, Hudson Brenda, Ahluwalia Jasjit S
Center for Bioethics, University of Minnesota, Minneapolis, MN 55455, USA.
J Gen Intern Med. 2007 Apr;22(4):427-34. doi: 10.1007/s11606-006-0045-8.
Homeless persons face many barriers to health care, have few resources, and experience high death rates. They live lives of disenfranchisement and neglect. Few studies have explored their experiences and attitudes toward death and dying. Unfortunately, studies done in other populations may not apply to homeless persons. Exploring these experiences and attitudes may provide insight into life, health care, and end-of-life (EOL) concerns of this population.
To explore the experiences and attitudes toward death and dying among homeless persons.
Qualitative study utilizing focus groups.
Fifty-three homeless persons recruited from homeless service agencies.
In-depth interviews, which were audiotaped and transcribed.
We present seven themes, some of which are previously unreported. Homeless persons described many significant experiences with death and dying, and many participants suffered losses while very young. These encounters influenced participants' attitudes toward risks and risky behavior: e.g., for some, these experiences provided justification for high-risk behaviors and influenced their behaviors while living on the streets. For others, they may be associated with their homelessness. Finally, these experiences informed their attitudes toward death and dying as well as EOL care; homeless persons believe that care will be poor at the EOL.
Findings from this study have implications for addressing social services, health promotion, prevention, and EOL care for homeless persons, as well as for others who are poor and disenfranchised.
无家可归者在获得医疗保健方面面临诸多障碍,资源匮乏,死亡率高。他们过着被剥夺权利和被忽视的生活。很少有研究探讨他们对死亡和临终的经历及态度。不幸的是,针对其他人群的研究可能不适用于无家可归者。探索这些经历和态度可能有助于深入了解这一人群的生活、医疗保健及临终关怀问题。
探讨无家可归者对死亡和临终的经历及态度。
采用焦点小组的定性研究。
从无家可归者服务机构招募的53名无家可归者。
进行深入访谈,并录音和转录。
我们呈现了七个主题,其中一些是此前未报道过的。无家可归者描述了许多与死亡和临终相关的重要经历,许多参与者在非常年轻时就遭受了损失。这些经历影响了参与者对风险和危险行为的态度:例如,对一些人来说,这些经历为高风险行为提供了正当理由,并影响了他们在街头生活时的行为。对另一些人来说,这些经历可能与他们的无家可归状态有关。最后,这些经历影响了他们对死亡和临终以及临终关怀的态度;无家可归者认为临终关怀会很差。
本研究的结果对解决无家可归者的社会服务、健康促进、预防及临终关怀问题具有启示意义,对其他贫困和被剥夺权利的人群也有借鉴作用。