Paul Baerwald School of Social Work & Social Welfare, Hebrew University of Jerusalem, Jerusalem, Israel.
School of Social Work, Sapir Academic College, Hof Ashkelon, Israel.
Fam Process. 2021 Mar;60(1):285-298. doi: 10.1111/famp.12538. Epub 2020 Apr 15.
Following a rise in the life expectancy of cystic fibrosis (CF) patients, many adults with CF form couple relationships. Yet, dyadic coping has not been previously examined in people with CF. This study examined how adults with CF and their partners cope as a couple with the illness, and what meanings each partner and the couple as a unit attribute to the experience. Seventeen adult CF patients and their partners participated in separate semi-structured in-depth interviews. Two main patterns of dyadic coping with CF were identified as follows: cooperation and tension. For couples in cooperation, the marital relationship served as a resource for adaptive coping. These couples were characterized by similarities in their perception of the place of CF in their lives and of their roles in the marital relationship. Couples in tension described the couple relationship as strained by difficulty of accepting the disease, proliferation of negative emotions, and a sense of burden and loneliness in the process of coping. Findings point to the importance of mutual empathy, clear and accepted division of roles between the partners, and open communication for facilitating coping as a couple.
在囊性纤维化 (CF) 患者的预期寿命增加后，许多 CF 成年患者形成了伴侣关系。然而，CF 患者的对偶应对并未得到先前的研究。本研究调查了 CF 患者及其伴侣如何作为夫妻共同应对疾病，以及每个伴侣和夫妻双方如何赋予这一经历意义。17 名 CF 成年患者及其伴侣分别参加了半结构化深度访谈。确定了两种主要的 CF 对偶应对模式：合作和紧张。对于合作的夫妇，婚姻关系是适应应对的资源。这些夫妇的特点是他们对 CF 在生活中的地位以及他们在婚姻关系中的角色的看法相似。紧张的夫妇描述说，由于难以接受疾病、负面情绪的滋生以及在应对过程中感到负担和孤独，夫妻关系紧张。研究结果表明，相互共情、伴侣之间明确和可接受的角色分工以及开放沟通对于促进夫妻共同应对非常重要。
