Delelis Gérald, Christophe Véronique, Leroy Sylvie, Vanneste Johanne, Wallaert Benoît
Université de Lille, France.
Scand J Psychol. 2008 Dec;49(6):583-9. doi: 10.1111/j.1467-9450.2008.00683.x. Epub 2008 Sep 22.
An earlier diagnosis and better overall multidisciplinary care enable people suffering from Cystic Fibrosis (CF) to have a life expectancy of 40. Consequently, new populations and questions about the development of the life of couples have arisen. This study by questionnaires takes a first look at marital adjustment, anxiety, depression, and emotion focused, social support focused, and problem focused coping strategies in 16 CF patients and their partners. As a whole, the couples' marital adjustment level was good; it was higher for men who were patients than men who were partners, and vice versa for women. Anxiety was high for at least one partner in 10 of the couples; depression, for at least one partner in seven of them. The participants seem to use coping strategies to a lesser extent than the general population. The results are discussed in terms of how the quality of life as a couple with one partner suffering from CF is affected by the proper mutual adjustment of the partners.
早期诊断和更好的整体多学科护理使患有囊性纤维化（CF）的人预期寿命达到40岁。因此，出现了新的人群以及关于夫妻生活发展的问题。这项问卷调查研究首次审视了16名CF患者及其伴侣的婚姻调适、焦虑、抑郁，以及聚焦情绪、聚焦社会支持和聚焦问题的应对策略。总体而言，夫妻的婚姻调适水平良好；患者男性的调适水平高于伴侣男性，而女性情况则相反。10对夫妻中至少有一方伴侣焦虑程度较高；7对夫妻中至少有一方伴侣抑郁程度较高。与普通人群相比，参与者似乎较少使用应对策略。研究结果从一方患有CF的夫妻生活质量如何受到伴侣之间适当相互调适的影响这一角度进行了讨论。
