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多发性硬化症(MS)患者下尿路症状(LUTS)的管理策略:对MS患者和医疗保健专业人员观点的定性研究

Management strategies for lower urinary tract symptoms (LUTS) among people with multiple sclerosis (MS): a qualitative study of the perspectives of people with MS and healthcare professionals.

作者信息

Al Dandan Hawra B, Galvin Rose, McClurg Doreen, Coote Susan

机构信息

School of Allied Health, Faculty of Education and Health Sciences, University of Limerick, Limerick, Ireland.

Imam Abdulrahman Bin Faisal University, Dammam, Saudi Arabia.

出版信息

HRB Open Res. 2019 Nov 18;2:31. doi: 10.12688/hrbopenres.12960.1. eCollection 2019.

Abstract

Neurogenic lower urinary tract dysfunction (NLUTD) is defined as a lower urinary tract dysfunction secondary to confirmed pathology of the nervous system. NLUTD is common in people with multiple sclerosis (MS), with prevalence estimates ranging from 49% to 92%. Managing NLUTD is complex and can be comprised of pharmacological and non-pharmacological interventions. Qualitative research exploring perspectives of people with MS and healthcare professionals on living with and managing NLUTD symptoms is sparse. This study aims to explore the perspectives of people with MS and healthcare professionals on managing NLUTD symptoms. A qualitative descriptive approach will be applied in this study using audio-recorded semi structured interviews for people with MS and healthcare professionals. The Consolidated Criteria for Reporting Qualitative Studies (COREQ) guidelines will be used to standardize the conduct and reporting of the research. People with MS will be recruited through a gatekeeper at MS Ireland. Healthcare professionals will be recruited through gatekeepers at Irish Practice Nurses Association, Continence Foundation of Ireland, Irish Society of Chartered Physiotherapists, and Physiotherapists Interested in MS Group. Interviews will be transcribed and exported to NVivo software package (Version 12) for analysis. Data will be collectively synthesised using thematic analysis. It is anticipated that exploring perspectives of people with MS and healthcare professionals on managing symptoms (including current practice) of NLUTD in MS will assist in the development of an evidence-based and stakeholder informed intervention for NLUTD in people with MS.

摘要

神经源性下尿路功能障碍(NLUTD)被定义为继发于确诊的神经系统病变的下尿路功能障碍。NLUTD在多发性硬化症(MS)患者中很常见,患病率估计在49%至92%之间。管理NLUTD很复杂,可能包括药物和非药物干预措施。探索MS患者和医疗保健专业人员对NLUTD症状的生活体验及管理的定性研究很少。本研究旨在探讨MS患者和医疗保健专业人员对管理NLUTD症状的看法。本研究将采用定性描述方法,对MS患者和医疗保健专业人员进行录音半结构化访谈。将使用定性研究报告统一标准(COREQ)指南来规范研究的实施和报告。MS患者将通过爱尔兰多发性硬化症协会的一名把关人招募。医疗保健专业人员将通过爱尔兰执业护士协会、爱尔兰尿失禁基金会、爱尔兰特许物理治疗师协会以及对MS群体感兴趣的物理治疗师协会的把关人招募。访谈将被转录并导出到NVivo软件包(第12版)进行分析。数据将使用主题分析进行综合。预计探索MS患者和医疗保健专业人员对MS中NLUTD症状管理(包括当前实践)的看法将有助于为MS患者的NLUTD制定基于证据且有利益相关者参与的干预措施。

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