家长对儿科住院患者开放式病历的看法。
Parent Perspectives on Pediatric Inpatient OpenNotes.
作者信息
Smith Catherine Arnott, Coller Ryan J, Dean Shannon M, Sklansky Daniel, Hoonakker Peter L T, Smith Windy, Thurber Anne S, Ehlenfeldt Brad D, Kelly Michelle M
机构信息
The Information School, University of Wisconsin-Madison, Madison, WI.
Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, WI.
出版信息
AMIA Annu Symp Proc. 2020 Mar 4;2019:812-819. eCollection 2019.
INTRODUCTION
169 U.S. health systems now engage in OpenNotes: a movement to share clinical notes with patients. Few studies have focused on releasing notes during hospitalization, pediatrics, or parents/caregiver perspectives.
METHODS
A focus group was conducted with eight parents with experience caring for a hospitalized child at a Midwest children's hospital. In the 2-hour session, parents were asked about their perspectives of the idea of sharing inpatient doctors' daily notes with parents during their child's hospitalization. Qualitative analysis was conducted to elicit themes related to the potential benefits and challenges of sharing inpatient notes.
RESULTS
The most mentioned benefits included notes providing information as a reference for improved family education/understanding, communication/continuity, and advocacy/empowerment. Challenges were primarily related to note content, impaired communication and negative impact on families.
CONCLUSION
Participants identified multiple potential benefits of and challenges to sharing notes with parents during their child's hospitalization but also acknowledged the impact on healthcare professionals who work alongside them.
引言
美国169个医疗系统目前都参与了“开放病历”活动，即一项与患者共享临床病历的行动。很少有研究关注住院期间病历的公开、儿科情况，或家长/照顾者的观点。
方法
对八位在一家中西部儿童医院有照顾住院儿童经验的家长进行了焦点小组访谈。在两小时的访谈中，询问了家长对于在孩子住院期间与他们共享住院医生每日病历这一想法的看法。进行了定性分析，以找出与共享住院病历潜在益处和挑战相关的主题。
结果
最常提到的益处包括病历能提供信息，作为改善家庭教育/理解、沟通/连续性以及维权/赋权的参考。挑战主要与病历内容、沟通障碍以及对家庭的负面影响有关。
结论
参与者确定了在孩子住院期间与家长共享病历的多种潜在益处和挑战，但也承认这对与他们一同工作的医疗专业人员会产生影响。
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