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癌症青少年和青年使用症状启发式应用程序:提供者的看法和行动。

Adolescents and Young Adults with Cancer Using a Symptom Heuristics App: Provider Perceptions and Actions.

机构信息

Inpatient Cancer Care Unit, Seattle Children's Hospital, Seattle, Washington, USA.

Division of Pediatric Hematology/Oncology/BMT, Children's Mercy Hospital, Kansas City, Missouri, USA.

出版信息

J Adolesc Young Adult Oncol. 2020 Oct;9(5):579-585. doi: 10.1089/jayao.2019.0160. Epub 2020 Apr 23.

Abstract

This study examined health care providers' perceptions of the usefulness and ease of use of a symptom heuristics app delivered via a tablet computer as a resource for understanding symptom experiences of adolescents and young adults (AYAs) with cancer. AYAs' app-generated symptom reports were compared with providers' documentation of AYAs' symptoms. This multisite study included responses from 86 AYAs 15-29 years of age who completed the Computerized Symptom Capture Tool (C-SCAT) before two scheduled visits for chemotherapy. After each visit, their providers completed a survey addressing their perspective of: (1) the usefulness of data provided by the C-SCAT to understand the AYAs' symptom experience, and (2) the nature of the discussion of symptoms with the AYA. An electronic health record review compared symptoms that AYAs identified by using the C-SCAT with providers' documentation of symptoms. One hundred forty-four complete surveys were returned after 162 visits. Fifty percent ( = 72) of responses reported that the C-SCAT helped identify the patient's symptoms, and 53% ( = 76) reported that it helped identify the patient's priority symptoms. Providers also reported higher patient engagement and more focused discussions regarding symptoms. They reported that use of the C-SCAT facilitated the development of symptom management plans. Priority symptoms were documented more frequently than nonpriority symptoms (54% vs. 32.7%;  < 0.01) as was a plan for managing priority symptoms (33.7% vs. 17.9%;  < 0.01). Use of the C-SCAT enhanced providers' understanding of AYAs' symptom experiences. Further research is needed to demonstrate the effectiveness of the C-SCAT as a resource to improve symptom management among AYAs with cancer.

摘要

这项研究考察了医疗保健提供者对平板电脑提供的症状启发式应用程序(用于理解青少年和年轻成人癌症患者的症状体验)的有用性和易用性的看法。将 AYA 应用程序生成的症状报告与提供者记录的 AYA 症状进行比较。这项多站点研究包括 86 名年龄在 15-29 岁的 AYA 对计算机化症状采集工具(C-SCAT)的回复,这些患者在接受两次化疗预约前完成了 C-SCAT。每次就诊后,他们的提供者都会完成一项调查,内容涉及他们对以下两个方面的看法:(1)C-SCAT 提供的数据对理解 AYA 的症状体验的有用性,以及(2)与 AYA 讨论症状的性质。电子健康记录审查比较了 AYA 通过 C-SCAT 识别的症状与提供者记录的症状。在 162 次就诊后,共收到 144 份完整的调查问卷。50%( = 72)的回复报告称 C-SCAT 有助于识别患者的症状,53%( = 76)的回复报告称它有助于识别患者的优先症状。提供者还报告称,患者的参与度更高,对症状的讨论更集中。他们报告称,使用 C-SCAT 有助于制定症状管理计划。优先症状比非优先症状记录更频繁(54%比 32.7%; < 0.01),管理优先症状的计划也更频繁(33.7%比 17.9%; < 0.01)。C-SCAT 的使用增强了提供者对 AYA 症状体验的理解。需要进一步的研究来证明 C-SCAT 作为改善癌症青少年症状管理的资源的有效性。

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本文引用的文献

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Priority Symptoms, Causes, and Self-Management Strategies Reported by AYAs With Cancer.优先症状、原因和癌症青年报告的自我管理策略。
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