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心脏病患者的姑息治疗。

Palliative care for people living with cardiac disease.

机构信息

Palliative Care Unit and Competence Center, Department of Internal Medicine, Spital Schwyz, Schwyz, Switzerland

Department of Cardiology and Laboratory of Cardiovascular Interventions,The Children’s Memorial Health Institute, Warsaw, Poland

出版信息

Kardiol Pol. 2020 Apr 24;78(4):364-373. doi: 10.33963/KP.15276.

Abstract

Many cardiovascular diseases lead to heart failure, which is a progressive syndrome causing significant distress and limiting the quality of life, despite optimal cardiologic treatment. It is estimated that about 26 000 people in Poland suffer from advanced heart failure, and this number is growing. That is why palliative care (PC) dedicated to people living with end‑stage cardiac diseases should be urgently implemented in Poland. Well‑organized PC may not only relieve symptoms and improve quality of life in people living with cardiac diseases not responding to treatment but also support patients and their families during the dying process. Palliative care in patients with cardiac diseases should be continued during the end-of-life period. It should be implemented regardless of prognosis, and adjusted to patients' needs. Two approaches to PC are presented in this expert opinion. The first one (generic) is provided by all medical professionals incorporating PC principles into the usual patient care. The second approach, namely, specialized PC, is ensured by a multiprofessional team or at least a PC specialist who received appropriate training in PC. The model of needs-based (not prognosis-based) implementation of PC is discussed in this paper. Symptom control, support in decision-making, and sensitive, open communication are considered integral elements of PC interventions. Medical professionals developing PC in Poland should think about groups of patients with special needs like those with valvular heart disease, grown‑up congenital heart disease, and pulmonary arterial hypertension, as well as elderly people. This consensus document presents main recommendations for future PC organization in Poland. Among others, we suggest changing the Polish National Health Fund reimbursement rules regarding PC and improving cardiologist education on PC.

摘要

许多心血管疾病会导致心力衰竭,这是一种进行性综合征,即使接受了最佳的心脏治疗,也会导致严重的不适并限制生活质量。据估计,波兰约有 26000 人患有晚期心力衰竭,而且这个数字还在不断增加。这就是为什么波兰应该紧急实施专门针对晚期心脏疾病患者的姑息治疗(PC)。组织良好的 PC 不仅可以缓解治疗反应不佳的心脏疾病患者的症状并提高其生活质量,还可以在患者生命末期为患者及其家属提供支持。在生命末期,心脏疾病患者的姑息治疗应持续进行。无论预后如何,都应实施姑息治疗,并根据患者的需求进行调整。本文提出了两种姑息治疗方法。第一种方法(通用型)是由所有医疗专业人员将姑息治疗原则纳入常规患者护理中提供的。第二种方法,即专门的姑息治疗,由多学科团队或至少一名接受过姑息治疗适当培训的姑息治疗专家来确保。本文讨论了基于需求(而非预后)实施姑息治疗的模式。症状控制、决策支持以及敏感、开放的沟通被认为是姑息治疗干预的组成部分。在波兰开展姑息治疗的医疗专业人员应该考虑到具有特殊需求的患者群体,如瓣膜性心脏病、成人先天性心脏病和肺动脉高压患者,以及老年人。本文提出了未来波兰姑息治疗组织的主要建议。其中包括改变波兰国家卫生基金对姑息治疗的报销规则,以及改善心脏病专家对姑息治疗的教育。

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