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在线支持痴呆患者的家庭照顾者:随机对照试验和准实验研究的系统评价和荟萃分析。

Online support for family caregivers of people with dementia: a systematic review and meta-analysis of RCTs and quasi-experimental studies.

机构信息

Department of Personality, Assessment, and Psychological Treatments, Faculty of Psychology, University of the Basque Country UPV/EHU, San Sebastián, Guipúzcoa, Spain.

Department of Social Psychology and Behavioral Sciences Methods, Faculty of Psychology, University of the Basque Country UPV/EHU, San Sebastián, Guipúzcoa, Spain.

出版信息

Aging Ment Health. 2021 Jul;25(7):1165-1180. doi: 10.1080/13607863.2020.1758900. Epub 2020 May 2.

DOI:10.1080/13607863.2020.1758900
PMID:32363901
Abstract

Online interventions focused on mitigating the negative impact of care on family caregivers of people with dementia have become increasingly popular recently. The aim of this systematic review and meta-analysis was to analyze the effectiveness of these online support programs and to assess whether they do indeed enhance participants' wellbeing. A systematic literature search of 5 scientific databases was performed: PubMed, PsycInfo, CINAHL, Web of Science and Cochrane Library. Online interventions published between January 2014 and July 2018 targeted at informal family caregivers of people with dementia living at home were systemically reviewed. A total of 10 randomized controlled trials (RCTs) or studies with quasi-experimental designs were found. The characteristics of the interventions varied widely, as did their duration and results. In general, the effect size found was medium-small, despite the high methodological quality of the studies. The results reveal that online support interventions are a valid resource for improving caregivers' psychological wellbeing, including depression, anxiety, burden and caregiving competence. The best results were found for multi-component interventions: psychoeducation, training in psychological strategies and skills, professional support and online forums or support groups with other caregivers. The meta-analysis indicated that family caregivers' depression levels were reduced in the intervention group (Hedges' g = -0.21, 95% confidence interval of -0.410 to -0.025; z = -2.216:  = 0.027), although no significant differences were observed between the mean changes found in the intervention and control groups in relation to anxiety, burden or competence.Online interventions targeted at family caregivers can help improve their psychological wellbeing. Nevertheless, more randomized controlled trials are required, with rigorous methodological criteria, in order to provide further evidence of the utility of these interventions which seem to be effective.

摘要

最近,专注于减轻痴呆症患者家庭照顾者负面护理影响的在线干预措施越来越受到关注。本系统评价和荟萃分析的目的是分析这些在线支持计划的有效性,并评估它们是否确实能提高参与者的幸福感。我们对 5 个科学数据库(PubMed、PsycInfo、CINAHL、Web of Science 和 Cochrane Library)进行了系统的文献检索,检索目标是针对居家痴呆症患者的非正式家庭照顾者的在线干预措施。共发现 10 项随机对照试验(RCT)或具有准实验设计的研究。干预措施的特征差异很大,持续时间和结果也各不相同。总的来说,尽管研究方法质量较高,但发现的效应大小是中等偏小的。研究结果表明,在线支持干预措施是改善照顾者心理健康的有效资源,包括抑郁、焦虑、负担和照顾能力。多组分干预措施的效果最好:心理教育、心理策略和技能培训、专业支持以及与其他照顾者的在线论坛或支持小组。荟萃分析表明,干预组的家庭照顾者的抑郁水平降低(Hedges' g = -0.21,95%置信区间为-0.410 至-0.025;z = -2.216:= 0.027),尽管干预组和对照组在焦虑、负担或能力方面的平均变化没有显著差异。针对家庭照顾者的在线干预措施可以帮助改善他们的心理健康。然而,需要更多具有严格方法学标准的随机对照试验,以提供这些干预措施有效性的进一步证据,这些干预措施似乎是有效的。

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