脑瘫儿童参与家庭和娱乐活动的纵向轨迹和参考百分位数。
Longitudinal Trajectories and Reference Percentiles for Participation in Family and Recreational Activities of Children with Cerebral Palsy.
机构信息
Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, Pennsylvania, USA.
Avery Information Services Ltd, Orillia, Ontario, Canada.
出版信息
Phys Occup Ther Pediatr. 2021;41(1):18-37. doi: 10.1080/01942638.2020.1758984. Epub 2020 May 2.
AIM
To create longitudinal trajectories and reference percentiles for frequency of participation in family and recreational activities for children with cerebral palsy (CP) by Gross Motor Function Classification System (GMFCS) level.
METHODS
708 children with CP 18-months to 12-years of age and their families participated in two to five assessments using the GMFCS and Child Engagement in Daily Life Measure. Data were analyzed using mixed-effects models and quantile regression.
RESULTS
Longitudinal trajectories depict the relatively stable level of frequency of participation with considerable individual variability. Average change in the frequency of participation scores of children from 2-12 years of age by GMFCS level varied from 3.7 (GMFCS level I) to - 9.0 points (GMFCS level V). A system to interpret the magnitude of change in percentiles over time is presented.
CONCLUSIONS
Longitudinal trajectories and reference percentiles can inform therapists and families for collaboratively designing services and monitoring performance to support children's participation in family and recreational activities.
目的
通过粗大运动功能分级系统（GMFCS）水平，为脑瘫（CP）儿童家庭和娱乐活动参与频率创建纵向轨迹和参考百分位数。
方法
708 名年龄在 18 个月至 12 岁之间的脑瘫儿童及其家庭使用 GMFCS 和儿童日常生活参与度量表进行了 2 到 5 次评估。使用混合效应模型和分位数回归对数据进行分析。
结果
纵向轨迹描绘了参与频率的相对稳定水平，同时存在相当大的个体差异。GMFCS 水平为 I 至 V 的儿童，其参与频率评分的平均变化范围从 3.7 分（GMFCS 水平 I）到-9.0 分（GMFCS 水平 V）。提出了一个解释随时间变化的百分位数变化幅度的系统。
结论
纵向轨迹和参考百分位数可以为治疗师和家庭提供信息，以便共同设计服务和监测表现，以支持儿童参与家庭和娱乐活动。
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