Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.
作者信息
Kraft Stephanie A, Duenas Devan M, Lewis Hannah, Shah Seema K
机构信息
Seattle Children's Hospital and Research Institute.
University of Washington School of Medicine.
出版信息
Am J Bioeth. 2020 Jun;20(5):31-33. doi: 10.1080/15265161.2020.1745936.
Abstract
摘要
相似文献
1
Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.弥合研究者与参与者之间的差距：建立有效研究关系的研究议程。
Am J Bioeth. 2020 Jun;20(5):31-33. doi: 10.1080/15265161.2020.1745936.
2
Participant observation and informed consent: relationships and tactical decision-making in nursing research.参与观察与知情同意：护理研究中的关系与策略决策
Nurs Ethics. 1994 Sep;1(3):163-72. doi: 10.1177/096973309400100305.
3
Ethical principles of informed consent: exploring nurses' dual role of care provider and researcher.知情同意的伦理原则：探索护士作为护理提供者和研究者的双重角色。
J Contin Educ Nurs. 2014 Jan;45(1):35-42. doi: 10.3928/00220124-20131223-03. Epub 2013 Dec 23.
4
Informed consent in human experimentation: bridging the gap between ethical thought and current practice.人体实验中的知情同意：弥合伦理思想与当前实践之间的差距。
UCLA Law Rev. 1986 Oct;34(1):67-130.
5
The case against contract: participant and investigator duty in clinical trials.反对契约的理由：临床试验中的参与者与研究者职责
Am J Bioeth. 2011 Apr;11(4):16-8. doi: 10.1080/15265161.2011.560349.
6
7
Can informed consent to research be adapted to risk?对研究的知情同意能否适应风险？
J Med Ethics. 2015 Jul;41(7):521-8. doi: 10.1136/medethics-2013-101912. Epub 2014 Oct 28.
8
Ethical challenges in qualitative research: examples from practice.定性研究中的伦理挑战：实践案例
Nurse Res. 2010;18(1):15-25. doi: 10.7748/nr2010.10.18.1.15.c8044.
9
Risk, respect for persons, and informed consent in comparative effectiveness research.比较效果研究中的风险、对人的尊重与知情同意
Am J Bioeth. 2013;13(12):46-8. doi: 10.1080/15265161.2013.851299.
10
Informed consent in medical experimentation.医学实验中的知情同意。
Ann R Coll Physicians Surg Can. 1987 Jan;20(1):29-31.
引用本文的文献
1
Exploring the participant experience in controlled human infection model (CHIM) trials: A modified grounded theory study.探索可控人类感染模型（CHIM）试验中的参与者体验：一项修正的扎根理论研究。
PLoS One. 2025 Aug 6;20(8):e0328378. doi: 10.1371/journal.pone.0328378. eCollection 2025.
2
Towards painless and productive research relationships: reflections on study design by a researcher with chronic pain for participants with chronic pain.迈向无痛且富有成效的研究关系：一位患有慢性疼痛的研究者对针对慢性疼痛参与者的研究设计的思考
Front Pain Res (Lausanne). 2025 Feb 5;5:1450667. doi: 10.3389/fpain.2024.1450667. eCollection 2024.
3
Attitudes Toward Providing Open Access for Use of Biospecimens and Health Records: A Cross-Sectional Study from Jordan.对提供生物样本和健康记录开放获取使用的态度：来自约旦的横断面研究。
Patient Prefer Adherence. 2023 Mar 28;17:895-903. doi: 10.2147/PPA.S402769. eCollection 2023.
4
Motivators and barriers towards clinical research participation: A population-based survey from an Arab MENA country.参与临床研究的动机和障碍：来自阿拉伯 MENA 国家的一项基于人群的调查。
PLoS One. 2022 Jun 24;17(6):e0270300. doi: 10.1371/journal.pone.0270300. eCollection 2022.
5
Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.在临床研究中展现“对人的尊重”：对不同基因组学研究参与者进行定性访谈的结果
J Med Ethics. 2020 Oct 6. doi: 10.1136/medethics-2020-106440.
本文引用的文献
1
Partnering With Patients to Bridge Gaps in Consent for Acute Care Research.与患者合作，弥合急性护理研究同意书中的差距。
Am J Bioeth. 2020 Jun;20(5):7-17. doi: 10.1080/15265161.2020.1745931.
2
How Do We Really Communicate? Challenging the Assumptions behind Informed Consent Interventions.我们究竟如何沟通？质疑知情同意干预背后的假设。
Ethics Hum Res. 2019 Jul;41(4):23-30. doi: 10.1002/eahr.500024.
3
Online Education and e-Consent for GeneScreen, a Preventive Genomic Screening Study.基因筛查预防性基因组筛查研究的在线教育与电子知情同意书
Public Health Genomics. 2017;20(4):235-246. doi: 10.1159/000481359. Epub 2017 Oct 26.
4
A randomized trial comparing concise and standard consent forms in the START trial.一项在START试验中比较简明同意书和标准同意书的随机试验。
PLoS One. 2017 Apr 26;12(4):e0172607. doi: 10.1371/journal.pone.0172607. eCollection 2017.
5
Understanding variations in patient screening and recruitment in a multicentre pilot randomised controlled trial: a vignette-based study.在一项多中心试点随机对照试验中理解患者筛查与招募的差异：一项基于案例的研究。
Trials. 2016 Oct 26;17(1):522. doi: 10.1186/s13063-016-1652-2.
6
Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making.患者对学习型健康系统的看法：信任和共同决策的重要性。
Am J Bioeth. 2015;15(9):4-17. doi: 10.1080/15265161.2015.1062163.
7
Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.提高研究知情同意过程中的理解：54 项随机对照试验中测试的干预措施的系统评价。
BMC Med Ethics. 2013 Jul 23;14:28. doi: 10.1186/1472-6939-14-28.
8
Interventions to improve research participants' understanding in informed consent for research: a systematic review.提高研究参与者对研究知情同意理解的干预措施：一项系统综述
JAMA. 2004 Oct 6;292(13):1593-601. doi: 10.1001/jama.292.13.1593.
9
The invisible hand in clinical research: the study coordinator's critical role in human subjects protection.临床研究中的无形之手：研究协调员在保护人类受试者方面的关键作用。
J Law Med Ethics. 2002 Fall;30(3):411-9. doi: 10.1111/j.1748-720x.2002.tb00410.x.
10
What makes clinical research ethical?临床研究的伦理准则是什么？
JAMA. 2000;283(20):2701-11. doi: 10.1001/jama.283.20.2701.
Zotero 插件