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Partnering With Patients to Bridge Gaps in Consent for Acute Care Research.与患者合作，弥合急性护理研究同意书中的差距。
Am J Bioeth. 2020 Jun;20(5):7-17. doi: 10.1080/15265161.2020.1745931.
2
How Do We Really Communicate? Challenging the Assumptions behind Informed Consent Interventions.我们究竟如何沟通？质疑知情同意干预背后的假设。
Ethics Hum Res. 2019 Jul;41(4):23-30. doi: 10.1002/eahr.500024.
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Online Education and e-Consent for GeneScreen, a Preventive Genomic Screening Study.基因筛查预防性基因组筛查研究的在线教育与电子知情同意书
Public Health Genomics. 2017;20(4):235-246. doi: 10.1159/000481359. Epub 2017 Oct 26.
4
A randomized trial comparing concise and standard consent forms in the START trial.一项在START试验中比较简明同意书和标准同意书的随机试验。
PLoS One. 2017 Apr 26;12(4):e0172607. doi: 10.1371/journal.pone.0172607. eCollection 2017.
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Understanding variations in patient screening and recruitment in a multicentre pilot randomised controlled trial: a vignette-based study.在一项多中心试点随机对照试验中理解患者筛查与招募的差异：一项基于案例的研究。
Trials. 2016 Oct 26;17(1):522. doi: 10.1186/s13063-016-1652-2.
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Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making.患者对学习型健康系统的看法：信任和共同决策的重要性。
Am J Bioeth. 2015;15(9):4-17. doi: 10.1080/15265161.2015.1062163.
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Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.提高研究知情同意过程中的理解：54 项随机对照试验中测试的干预措施的系统评价。
BMC Med Ethics. 2013 Jul 23;14:28. doi: 10.1186/1472-6939-14-28.
8
Interventions to improve research participants' understanding in informed consent for research: a systematic review.提高研究参与者对研究知情同意理解的干预措施：一项系统综述
JAMA. 2004 Oct 6;292(13):1593-601. doi: 10.1001/jama.292.13.1593.
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The invisible hand in clinical research: the study coordinator's critical role in human subjects protection.临床研究中的无形之手：研究协调员在保护人类受试者方面的关键作用。
J Law Med Ethics. 2002 Fall;30(3):411-9. doi: 10.1111/j.1748-720x.2002.tb00410.x.
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What makes clinical research ethical?临床研究的伦理准则是什么？
JAMA. 2000;283(20):2701-11. doi: 10.1001/jama.283.20.2701.

Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.

作者信息

Kraft Stephanie A, Duenas Devan M, Lewis Hannah, Shah Seema K

机构信息

Seattle Children's Hospital and Research Institute.

University of Washington School of Medicine.

出版信息

Am J Bioeth. 2020 Jun;20(5):31-33. doi: 10.1080/15265161.2020.1745936.

DOI:10.1080/15265161.2020.1745936
PMID:32364474
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7241299/
Abstract
摘要