Sethi Arshdeep Kaur, Singh Vineeta, Chaurasia Rameshwar Nath, Joshi Deepika, Pathak Abhishek, Rath Shivani, Mishra Ashutosh, Mishra Vijay Nath
Department of Neurology, Institute of Medical Sciences, Banaras Hindu University, Varanasi, Uttar Pradesh, India.
J Neurosci Rural Pract. 2020 Apr;11(2):278-285. doi: 10.1055/s-0040-1708569. Epub 2020 May 2.
Religious and sociocultural beliefs influence the nature of treatment and care received by people with epilepsy. This study aimed to study knowledge, attitude, and practice (KAP) among epilepsy patients in north India. In this study, 201 patients attending the outpatient and inpatient services of the neurology department of Sir Sunderlal Hospital, Banaras Hindu University, were asked to fill a questionnaire comprising 25 questions assessing the KAPs in English or Hindi, whichever the patient was proficient with. The same questionnaire was also given to 200 patients without epilepsy for the control group. Responses were recorded as yes/no/do not know. Approximately, 67% of the patients consisted of a young population, of which 64.7% were males and 35.3% were females. Around 25.9% of patients had studied up to 10th class, 96.5% of patients had heard of epilepsy, and 89.05% thought it was treatable by modern drugs. Out of all patients, 80.1% of patients believed that epilepsy was not contagious, 87.6% believed that they can work, 93.5% believed that they can marry, 66.5% did not feel discriminated by batchmates, and 78.5% did not feel discriminated by teachers. Of all patients, 41.8% said that they would disclose the epileptic condition of their daughters before marriage and 96.01% knew epilepsy patients should be taken to hospital. Poor knowledge, negative attitude, and malpractices regarding epilepsy are still prevalent in North India. Epilepsy patients have better knowledge than normal people about this disease. There is still a need to educate people about epilepsy.
宗教和社会文化信仰会影响癫痫患者接受治疗和护理的性质。本研究旨在调查印度北部癫痫患者的知识、态度和行为(KAP)。在本研究中,要求201名就诊于贝拿勒斯印度教大学苏nderlal爵士医院神经科门诊和住院部的患者填写一份包含25个问题的问卷,该问卷用英语或印地语评估KAP,患者可选择自己熟练的语言。同时,将相同的问卷发放给200名无癫痫的患者作为对照组。回答记录为是/否/不知道。大约67%的患者为年轻人,其中64.7%为男性,35.3%为女性。约25.9%的患者学历为十年级及以下,96.5%的患者听说过癫痫,89.05%的患者认为癫痫可用现代药物治疗。在所有患者中,80.1%的患者认为癫痫不具有传染性,87.6%的患者认为自己可以工作,93.5%的患者认为自己可以结婚,66.5%的患者感觉没有受到同学的歧视,78.5%的患者感觉没有受到老师的歧视。在所有患者中,41.8%的患者表示会在女儿婚前披露其癫痫病情,96.01%的患者知道癫痫患者应被送往医院。在印度北部,关于癫痫的知识匮乏、态度消极和行为不当的情况仍然普遍存在。癫痫患者对这种疾病的了解比正常人更好。仍有必要对人们进行癫痫方面的教育。