Whitebird Robin R, Solberg Leif I, Norton Christine K, Ziegenfuss Jeanette Y, Asche Stephen E, Grossman Elizabeth S
School of Social Work, Morrison Family College of Health, University of St. Thomas, St. Paul, MN.
HealthPartners Institute, Minneapolis, MN.
J Patient Cent Res Rev. 2020 Apr 27;7(2):157-164. doi: 10.17294/2330-0698.1738. eCollection 2020 Spring.
Patient-reported outcome measures (PROMs) are increasingly used in clinical care, but there have been few studies of what patients identify as the most important outcomes.
Semi-structured interviews were conducted with 65 patients undergoing hip or knee replacement, spinal discectomy/laminotomy, or a spinal fusion. Interviews focused on outcomes patients identified as important, perceived usefulness of standardized PROMs measures, and contextual situations important to their care. Data were analyzed using a directed content analysis approach.
Patients identified desired outcomes that were unique and important to them. Their preferred outcomes focused in the areas of freedom from pain, getting back to their normal life, and returning to an active lifestyle. Patients cared more about their individual preferred outcomes, which had more meaning for them, than a standardized PROM score. Patients also identified particular contextual situations that their care team was assumed to know about but that may not have been known.
Patients identify specific preferred outcomes from these surgical procedures that are important and meaningful to them and that frame whether they see their surgery as a success. They also identified personal factors that they assume their surgeons know about, which affect their care and recovery. These findings underscore the importance of engaging patients in discussions about their preferences and contextual factors both prior to and after surgery.
患者报告结局测量(PROMs)在临床护理中的应用日益广泛,但关于患者认为最重要的结局的研究却很少。
对65例接受髋关节或膝关节置换、脊柱椎间盘切除术/椎板切开术或脊柱融合术的患者进行了半结构化访谈。访谈重点关注患者认为重要的结局、标准化PROMs测量的感知有用性以及对其护理重要的背景情况。采用定向内容分析法对数据进行分析。
患者确定了对他们来说独特且重要的期望结局。他们偏好的结局集中在无痛、恢复正常生活以及回归积极生活方式等方面。患者更关心对他们来说更有意义的个人偏好结局,而不是标准化的PROM评分。患者还指出了他们认为护理团队应该了解但可能并不知晓的特定背景情况。
患者确定了这些手术的特定偏好结局,这些结局对他们来说很重要且有意义,并决定了他们是否认为手术成功。他们还指出了他们认为外科医生应该了解的个人因素,这些因素会影响他们的护理和康复。这些发现强调了在手术前后让患者参与关于其偏好和背景因素讨论的重要性。