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Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019.

作者信息

Mercuri Eugenio, Messina Sonia, Montes Jacqueline, Muntoni Francesco, Sansone Valeria A

机构信息

Centro Clinico Nemo, Fondazione Policlinico Universitario A. Gemelli IRCSS, Rome, Italy; Pediatric Neurology Unit, Catholic University, Largo Gemelli 8, 00168 Rome, Italy.

Department of Clinical and Experimental Medicine, University of Messina, Messina, Italy.

出版信息

Neuromuscul Disord. 2020 May;30(5):431-436. doi: 10.1016/j.nmd.2020.02.019. Epub 2020 Mar 7.

DOI:10.1016/j.nmd.2020.02.019

PMID:32386743

Abstract

摘要

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Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019.

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