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[唐氏综合征:父母对养育智障儿童的认知]

[Down Syndrome: Perception of Mothers and Fathers About Parenting a Child with Intellectual Disability].

作者信息

Sarimski Klaus

机构信息

Institut für Sonderpädagogik Pädagogische Hochschule Heidelberg Keplerstr. 87 69120 Heidelberg Deutschland Institut für Sonderpädagogik.

出版信息

Prax Kinderpsychol Kinderpsychiatr. 2020 May;69(3):236-251. doi: 10.13109/prkk.2020.69.3.236.

DOI:10.13109/prkk.2020.69.3.236
PMID:32394822
Abstract

Parents of children with intellectual disabilities report increased stress levels as well as experiences of personal growth and a positive impact on family relationship. 30 mothers and fathers of children with Down syndrome in school age complete questionnaires on the family impact of childhood disability, parental stress and child behavioral symptoms. Mothers as well as fathers report more positive than negative perceptions of the impact on the family. Negative impact is associated with the subjective level of stress. Mothers report more symptoms of stress than fathers. Behavioral problems of the child - as perceived by the parents - does not appear as a significant predictor of parenting stress in this sample. The results of a regression analysis suggest a significant contribution of paternal stress to the level of maternal stress. The results may help to understand family coping processes in the case of Down syndrome.

摘要

智障儿童的父母报告称压力水平有所增加,同时也有个人成长的经历以及对家庭关系产生了积极影响。30位学龄期唐氏综合征患儿的父母填写了关于童年残疾对家庭的影响、父母压力和儿童行为症状的问卷。母亲和父亲都报告称,对家庭影响的看法中积极的多于消极的。负面影响与主观压力水平相关。母亲报告的压力症状比父亲更多。在这个样本中,父母所感知到的孩子的行为问题似乎并不是养育压力的显著预测因素。回归分析的结果表明,父亲的压力对母亲的压力水平有显著影响。这些结果可能有助于理解唐氏综合征情况下的家庭应对过程。

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