Denburg Avram E, Ungar Wendy J, Chen Shiyi, Hurley Jeremiah, Abelson Julia
Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Toronto, M5G 1X8, Canada.
Institute of Health Policy, Management, and Evaluation, University of Toronto, Toronto, M5T 3M6, Canada.
Health Policy. 2020 Jun;124(6):647-658. doi: 10.1016/j.healthpol.2020.04.007. Epub 2020 May 13.
Preferences of members of the public are recognized as important inputs into health care priority-setting, though knowledge of such preferences is scant. We sought to generate evidence of public preferences related to healthcare resource allocation among adults and children.
We conducted an experimental stated preference survey in a national sample of Canadian adults. Preferences were elicited across a range of scenarios and scored on a visual analogue scale. Intervention group participants were randomized to a moral reasoning exercise prior to each choice task. The main outcomes were the differences in mean preference scores by group, scenario, and demographics.
Our results demonstrate a consistent preference by participants to allocate scarce health system resources to children. Exposure to the moral reasoning exercise weakened but did not eliminate this preference. Younger respondent age and parenthood were associated with greater preference for children. The top principles guiding participants' allocative decisions were treat equally, relieve suffering, and rescue those at risk of dying.
Our study affirms the relevance of age in public preferences for the allocation of scarce health care resources, demonstrating a significant preference by participants to allocate healthcare resources to children. However, this preference diminishes when challenged by exposure to a range of moral principles, revealing a strong public endorsement of equality of access. Definitions of value in healthcare based on clinical benefit and cost-effectiveness may exclude moral considerations that the public values, such as equality and humanitarianism, highlighting opportunities to enrich healthcare priority-setting through public engagement.
公众的偏好被认为是卫生保健资源分配决策的重要依据,然而目前对此类偏好的了解却很少。我们试图获取有关成人和儿童医疗保健资源分配方面公众偏好的证据。
我们在加拿大全国范围内对成年人进行了一项实验性的陈述偏好调查。在一系列情景中引出偏好,并在视觉模拟量表上进行评分。干预组参与者在每个选择任务之前被随机分配进行道德推理练习。主要结果是不同组、情景和人口统计学特征下平均偏好分数的差异。
我们的结果表明,参与者一致倾向于将稀缺的卫生系统资源分配给儿童。进行道德推理练习会削弱但不会消除这种偏好。较年轻的受访者年龄和为人父母与对儿童的更大偏好相关。指导参与者分配决策的首要原则是平等对待、减轻痛苦和拯救有死亡风险的人。
我们的研究证实了年龄在公众对稀缺卫生保健资源分配偏好中的相关性,表明参与者明显倾向于将卫生保健资源分配给儿童。然而,当受到一系列道德原则的挑战时,这种偏好会减弱,这表明公众强烈支持平等获取资源。基于临床效益和成本效益的医疗保健价值定义可能会排除公众所重视的道德考量,如平等和人道主义,这凸显了通过公众参与来丰富卫生保健资源分配决策的机会。