Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.
Skaraborg Institute for Research and Development, Skövde, Sweden.
Health Soc Care Community. 2020 Nov;28(6):2025-2036. doi: 10.1111/hsc.13014. Epub 2020 May 15.
Studio DöBra is a community-based initiative in which children (9 y/o) and older adults (mostly 80+) engaged with topics related to dying, death and loss through shared arts activities (e.g. collage, sculpture, games). In an ageing society, Sweden's end-of-life (EoL) care is increasingly professionalised and specialised, but there is little community involvement. One goal of Studio DöBra was therefore to support community engagement with EoL-related topics. Another goal was to create opportunities for interaction between children and older adults as there are few intergenerational meeting places. Two iterations of Studio DöBra were developed (2016, 2018) in different Swedish cities, utilising a community-based participatory research approach. Project groups comprised first author MK and representatives of community organisations such as meeting places for older adults, after-school centres and artistic organisations. Each iteration engaged eight children and eight older adults in a series of five workshops. This article investigates how children and older adults motivate their participation, their experiences of participating and ways in which they were affected by participation. We also investigate how parents reflect on their child's participation in Studio DöBra. Older adults, children and their parents were interviewed after each Studio DöBra. An inductive qualitative process guided by interpretive description was used to analyse the transcripts. Findings indicate that participants acted as individuals with agency in connecting across generations and in creating spaces for engaging with EoL-topics, not only in Studio DöBra but also in their social networks. Participants reflected on a changing sense of community through new intergenerational connections and social activities, and expressed a desire to maintain these. However, participants indicated sustainability challenges related to lacking agency in maintaining these spaces and sense of intergenerational community, as they rely on support from community organisations.
多布拉工作室是一个社区倡议，通过共同的艺术活动（例如拼贴、雕塑、游戏），让 9 岁的儿童和 80 岁以上的老年人参与到与死亡、临终和丧失相关的话题中。在老龄化社会中，瑞典的临终关怀越来越专业化和专门化，但社区参与度却很低。因此，多布拉工作室的目标之一是支持社区参与与临终相关的话题。另一个目标是为儿童和老年人创造互动的机会，因为很少有代际聚会的场所。该项目在两个不同的瑞典城市进行了两轮迭代（2016 年和 2018 年），采用了社区参与式研究方法。项目小组由第一作者 MK 和社区组织的代表组成，如老年人聚会场所、课后中心和艺术组织。每一轮迭代都有八名儿童和八名老年人参加一系列五次的工作坊。本文探讨了儿童和老年人参与的动机、他们的参与体验以及他们如何受到参与的影响。我们还探讨了父母如何反思孩子在多布拉工作室的参与。在每次多布拉工作室之后，对老年人、儿童及其父母进行了访谈。采用以解释性描述为指导的归纳定性过程对转录本进行了分析。研究结果表明，参与者作为具有能动性的个体在跨越代际的过程中行动，并为参与临终相关话题创造了空间，不仅在多布拉工作室，而且在他们的社交网络中也是如此。参与者通过新的代际联系和社交活动反思社区意识的变化，并表示希望保持这种联系。然而，参与者表示，由于缺乏维持这些空间和代际社区的能动性，以及维持这些空间和代际社区的意识，存在可持续性挑战，因为他们依赖社区组织的支持。
