Kleijberg Max, Hilton Rebecca, Ahlberg Beth Maina, Tishelman Carol
Department of Learning, Informatics, Management and Ethics, Karolinska Institute, 117 11 Stockholm, Sweden.
Research Centre, Stockholm University of the Arts, 104 50 Stockholm, Sweden.
Healthcare (Basel). 2021 Jun 19;9(6):764. doi: 10.3390/healthcare9060764.
Talking about dying, death, and loss may be difficult. Arts offer alternative ways of engaging with end-of-life (EoL) issues, but little is known about the means through which this occurs. In this article, we aim to explore mechanisms in arts activities that support community engagement with EoL issues, based on the community-based participatory action research project Studio DöBra. Studio DöBra was developed to support community engagement with EoL issues through intergenerational arts workshops involving community partners, children, and older adults. Initial analysis with community partners indicated the importance of play elements in arts activities. Continued analysis was therefore abductive, using play theory and qualitative data from Studio DöBra arts activities. Through iterative examination of theory and data, we modified play theory as we identified mechanisms supporting community engagement with EoL issues in arts activities. Findings can contribute to theory-building that can inform arts activities supporting community engagement with EoL issues.
谈论死亡、濒死和丧失可能很困难。艺术提供了参与临终问题的替代方式，但对于其发生的方式却知之甚少。在本文中，我们旨在基于以社区为基础的参与式行动研究项目“多布拉工作室”，探索艺术活动中支持社区参与临终问题的机制。“多布拉工作室”旨在通过涉及社区伙伴、儿童和老年人的跨代艺术工作坊，支持社区参与临终问题。与社区伙伴的初步分析表明了游戏元素在艺术活动中的重要性。因此，后续分析采用了溯因法，运用游戏理论和来自“多布拉工作室”艺术活动的定性数据。通过对理论和数据的反复审视，我们在确定支持社区参与艺术活动中临终问题的机制时，对游戏理论进行了修正。研究结果有助于理论构建，为支持社区参与临终问题的艺术活动提供参考。
