围生儿死亡对父母社会和家庭环境的影响。
Impact of Perinatal Death on the Social and Family Context of the Parents.
机构信息
Department of Nursing, Physiotherapy and Medicine, University of Almeria, 04120 La Cañada de San Urbano, Spain.
Faculty of Health Sciences, Universidad Autónoma de Chile, Temuco 01090, Chile.
出版信息
Int J Environ Res Public Health. 2020 May 14;17(10):3421. doi: 10.3390/ijerph17103421.
BACKGROUND
Perinatal death (PD) is a painful experience, with physical, psychological and social consequences in families. Each year, there are 2.7 million perinatal deaths in the world and about 2000 in Spain. The aim of this study was to explore, describe and understand the impact of perinatal death on parents' social and family life.
METHODS
A qualitative study based on Gadamer's hermeneutic phenomenology was used. In-depth interviews were conducted with 13 mothers and eight fathers who had suffered a perinatal death. Inductive analysis was used to find themes based on the data.
RESULTS
Seven sub-themes emerged, and they were grouped into two main themes: 1) perinatal death affects family dynamics, and 2) the social environment of the parents is severely affected after perinatal death.
CONCLUSIONS
PD impacts the family dynamics of the parents and their family, social and work environments. Parents perceive that society trivializes their loss and disallows or delegitimizes their grief.
IMPLICATIONS
Social care, health and education providers should pay attention to all family members who have suffered a PD. The recognition of the loss within the social and family environment would help the families to cope with their grief.
背景
围产期死亡（PD）是一种痛苦的经历，会给家庭带来身体、心理和社会方面的后果。全世界每年有 270 万例围产儿死亡，西班牙约有 2000 例。本研究旨在探讨、描述和理解围产儿死亡对父母社会和家庭生活的影响。
方法
本研究采用基于伽达默尔解释学现象学的定性研究方法。对 13 名经历过围产儿死亡的母亲和 8 名父亲进行了深入访谈。采用归纳分析法，根据数据找出主题。
结果
出现了 7 个副标题，分为两个主要主题：1）围产儿死亡影响家庭动态，2）父母的社会环境在围产儿死亡后受到严重影响。
结论
PD 会影响父母及其家庭的家庭动态、社会和工作环境。父母认为社会轻视他们的损失，不允许或使他们的悲痛失去合法性。
意义
社会关怀、卫生和教育提供者应关注所有经历过 PD 的家庭成员。在社会和家庭环境中承认这种损失将有助于家庭应对悲伤。
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