霍奇金淋巴瘤幸存者健康：基于网络的干预措施的开发。
Hodgkin Lymphoma Survivor Wellness: Development of a Web-Based Intervention.
机构信息
Dana-Farber Cancer Institute.
University of Washington.
出版信息
Clin J Oncol Nurs. 2020 Jun 1;24(3):284-289. doi: 10.1188/20.CJON.284-289.
BACKGROUND
Informational and supportive care resources are needed for Hodgkin lymphoma (HL) survivors.
OBJECTIVES
The aim of this article is to adapt and evaluate a previously developed survivorship care website for HL survivors.
METHODS
A mixed-methods, user-centered design, including one-time focus groups, was followed by iterative web design and user testing. Transcripts were content analyzed, and survey responses were summarized.
FINDINGS
HL survivors need survivorship care education and support. Tailored web-based resources may be an effective adjunct to clinical care. The Survivor Wellness website is a usable web-based resource for HL survivors that may facilitate survivorship care.
背景
霍奇金淋巴瘤（HL）幸存者需要信息和支持性护理资源。
目的
本文旨在改编和评估之前为 HL 幸存者开发的生存护理网站。
方法
采用混合方法、以用户为中心的设计，包括一次性焦点小组，随后进行迭代式网页设计和用户测试。对转录本进行内容分析，并总结调查回复。
发现
HL 幸存者需要生存护理教育和支持。定制的基于网络的资源可能是临床护理的有效辅助手段。幸存者健康网站是 HL 幸存者一个可用的基于网络的资源，可促进生存护理。
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