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“走向接纳的旅程”:在希腊适应 HIV 生活的过程。一项定性研究。

"A journey towards acceptance": The process of adapting to life with HIV in Greece. A Qualitative study.

机构信息

Acute Adult Nursing, Faculty of Health, Social Care and Education, Kingston University and St George's, University of London, Kingston Hill Campus, Kingston upon Thames KT2 7LB, United Kingdom.

Health and Justice, Health Protection Team, Public Health Wales, 4th Floor, Number 2 Capital Quarter, Tyndall Way, Cardiff CF10 4BZ, United Kingdom.

出版信息

Appl Nurs Res. 2020 Jun;53:151249. doi: 10.1016/j.apnr.2020.151249. Epub 2020 Mar 7.

Abstract

UNLABELLED

Aim To identify the experiences related to adaptation for people living with HIV in Greece and to explore different adaptation stages as well as their individual reactions.

BACKGROUND

Receiving an HIV positive diagnosis leads to major changes in an individual's life and it can trigger an array of emotions including fear, despair and loss of control. As the profile of the disease has changed due to its transition into a chronic disease and extended life expectancy, adaptation to life and coping with uncertain events is of paramount importance.

METHOD

Interpretative phenomenological research design was used to guide data collection and analysis. A purposive sampling technique was used. Ethical procedures were taken into account and nine individuals who were diagnosed with HIV took part in the study using semi-structured interviews.

RESULTS

Data analysis revealed the different stages of adaptation that the participants experienced after an HIV positive diagnosis. A superordinate theme identified as 'a journey towards acceptance' while five subthemes were formed, namely, 'Communicating the bad news, Conscious loneliness, Getting information, Receiving Support, and Moving on with hope'.

CONCLUSION

An HIV positive diagnosis can affect the very core of the individual as the essence of -self- is targeted and in need of reform. Education, empathy, family and social support can help the individual make small steps towards a greater journey, that of acceptance.

摘要

目的

确定希腊艾滋病毒感染者适应相关的经验,并探讨不同的适应阶段及其个体反应。

背景

艾滋病毒阳性诊断会导致个体生活的重大变化,并可能引发一系列情绪,包括恐惧、绝望和失控。随着疾病从急性病转变为慢性病和预期寿命延长,适应生活和应对不确定事件变得至关重要。

方法

采用解释性现象学研究设计来指导数据收集和分析。采用了有针对性的抽样技术。考虑到伦理程序,有 9 名被诊断出艾滋病毒的个体通过半结构化访谈参与了研究。

结果

数据分析揭示了参与者在艾滋病毒阳性诊断后经历的不同适应阶段。一个被确定为“走向接受的旅程”的上位主题,同时形成了五个下位主题,分别是“传达坏消息、有意识的孤独、获取信息、获得支持和充满希望地继续前进”。

结论

艾滋病毒阳性诊断会影响个体的核心,因为自我的本质受到了攻击,需要进行改革。教育、同理心、家庭和社会支持可以帮助个体朝着接受的方向迈出一小步,走向更大的旅程。

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