荷兰艾滋病毒感染者和艾滋病毒脆弱人群生活质量的经验性艾滋病毒正负面影响。
The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands.
机构信息
Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands.
Department of Internal Medicine, University Medical Center Utrecht, Utrecht, The Netherlands.
出版信息
Sci Rep. 2022 Dec 19;12(1):21887. doi: 10.1038/s41598-022-25113-5.
This qualitative study aimed to explore the experienced influence of HIV on the quality of life (QoL) of people with HIV (PHIV) and key populations without but are vulnerable to HIV in the Netherlands. We conducted and thematically analyzed interviews with 29 PHIV and 13 participants from key populations without HIV (i.e., men who have sex with men). PHIV and key populations shared positive meaningful experiences regarding HIV, i.e., feeling grateful for ART, life, and the availability of PrEP, being loved and supported in the light of HIV, and providing support to the community. Negative predominant experiences regarding HIV were described by both PHIV and key populations as the negative effects of ART, challenges with regards to disclosing HIV, social stigmatization, and self-stigma. It remains important to support HIV community organizations in their efforts to reduce social stigmatization and to continue improving biomedical interventions for HIV.
本定性研究旨在探讨艾滋病毒对荷兰艾滋病毒感染者（PHIV）和易感染艾滋病毒的关键人群（虽未感染艾滋病毒，但易受感染）的生活质量（QoL）的经验影响。我们对 29 名 PHIV 和 13 名来自无 HIV 的关键人群（即男男性行为者）参与者进行了访谈，并对其进行了主题分析。PHIV 和关键人群对艾滋病毒有积极的有意义的体验，例如，对 ART、生命和 PrEP 的可及性表示感激，在艾滋病毒的影响下被爱和支持，以及为社区提供支持。PHIV 和关键人群都描述了与艾滋病毒相关的主要负面体验，即 ART 的负面影响、披露 HIV 的挑战、社会污名化和自我污名化。支持艾滋病毒社区组织努力减少社会污名化并继续改进艾滋病毒的生物医学干预措施仍然很重要。
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