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“就像一根针一直扎在我的臀部,基本上一直都是这样”。英国国家医疗服务体系中患有大转子疼痛综合征患者的经历和感受。

"It's just like a needle going into my hip, basically all of the time". The experiences and perceptions of patients with Greater Trochanteric Pain syndrome in the UK National Health Service.

机构信息

The Royal Orthopaedic Hospital, Birmingham, UK.

University of Leicester, East Midlands, UK.

出版信息

Musculoskelet Sci Pract. 2020 Jun;47:102175. doi: 10.1016/j.msksp.2020.102175. Epub 2020 Apr 29.

Abstract

BACKGROUND

Greater Trochanteric Pain syndrome (GTPS) is a condition causing lateral hip pain, which can be both persistent and debilitating. Data suggests that NHS patients with GTPS often have complex presentations with greater risk of developing persistent pain. No research to date has looked to understand the lived experience of patients with GTPS.

OBJECTIVES

This data may help inform a programme of intervention development for testing in a future randomised controlled trial. Hence, this qualitative study aimed to provide insight into the experiences and perceptions of patients suffering with GTPS.

DESIGN

Qualitative study using semi-structured interviews.

METHODS

Ten patients diagnosed with GTPS in consultant-led clinic at one NHS Hospital. Patients were identified from the physiotherapy waiting list and approached via a postal letter. Once informed consent was gained, semi-structured telephone interviews were conducted, transcribed verbatim and analysed using the Framework Method.

RESULTS

Data were analysed with reference to five pre-determined themes (1) living with persistent pain; (2) understanding the problem and pain; (3) experiences of previous treatment; (4) beliefs about activity and exercise; (5) the future.

CONCLUSION

The participants with GTPS, interviewed in this study commonly suffered from debilitating pain, affecting them during activity and at rest. They were confused about the diagnoses they were given and the meaning of their pain in relation to activity. Furthermore, participants were often either uncertain or pessimistic about their potential to recover.

CLINICAL TRIALS REGISTRY

ClinicalTrials.gov Identifier: NCT03720587.

摘要

背景

大转子疼痛综合征(GTPS)是一种引起髋关节外侧疼痛的病症,可能持续存在且使人虚弱。有数据表明,NHS 中患有 GTPS 的患者通常表现出复杂的症状,发展为持续性疼痛的风险更高。迄今为止,尚无研究旨在了解 GTPS 患者的生活体验。

目的

这些数据可能有助于为未来的随机对照试验中的干预措施开发计划提供信息。因此,本定性研究旨在深入了解患有 GTPS 的患者的经历和看法。

设计

采用半结构式访谈的定性研究。

方法

在 NHS 医院的顾问主导诊所中诊断出 10 名患有 GTPS 的患者。从物理治疗等候名单中确定患者,并通过邮寄信件联系他们。一旦获得知情同意,便进行半结构式电话访谈,逐字转录并使用框架方法进行分析。

结果

根据五个预先确定的主题对数据进行了分析:(1)持续性疼痛的生活;(2)对问题和疼痛的理解;(3)以前治疗的经历;(4)对活动和锻炼的信念;(5)未来。

结论

在这项研究中接受采访的 GTPS 参与者通常患有使人虚弱的疼痛,这些疼痛在活动和休息时都会影响他们。他们对自己的诊断感到困惑,并且对与活动相关的疼痛含义感到困惑。此外,参与者对自己康复的潜力通常不确定或悲观。

临床试验注册

ClinicalTrials.gov 标识符:NCT03720587。

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