Department of Urology, HP C04.236, University Medical Center Utrecht, Utrecht, The Netherlands.
Curr Opin Urol. 2020 Jul;30(4):491-495. doi: 10.1097/MOU.0000000000000771.
The aim of this article is to give an overview of recent literature on transitional care of children with complex urological disease.
Most studies on transitional care concerned spina bifida patients. Assessment of current practices revealed that formalized clinics for transitional care may improve healthcare. However, there is still little consensus among healthcare providers on how to organize transitional care. A widely recognized problem is a lack of interested, dedicated, and well-trained staff for transitional care and lifelong follow-up of complex urological patients and also a lack of funding. The timing of the pediatric urologist's transfer to adult care may be helped by measuring transitional readiness in adolescent patients. Outcomes could also expose specific issues as were patients need assistance or education. Introduction of a transitional protocol made patients feel more ready for transition. However, even in established transitional clinics, there is a lack of disease-specific awareness of sexuality and fertility issues among patients.
Although there is growing awareness of the importance of well-organized and protocolled transitional care for young patients with complex urological disease, this is by no means sufficiently implemented. Furthermore, there is shortage of dedicated and experienced healthcare providers and a lack of funding.
本文旨在概述儿童泌尿外科复杂疾病过渡护理的最新文献。
大多数过渡护理研究都涉及脊柱裂患者。对当前实践的评估表明，过渡护理的规范化门诊可能会改善医疗保健。然而，医疗服务提供者在如何组织过渡护理方面仍存在很大分歧。一个公认的问题是，缺乏有兴趣、有奉献精神和受过良好培训的人员来为复杂泌尿外科患者提供过渡护理和终身随访，并且资金也不足。通过衡量青少年患者的过渡准备情况，可以帮助儿科泌尿科医生将其转移到成人护理。结果还可以暴露具体问题，例如患者是否需要帮助或教育。引入过渡方案可以使患者感到更有准备进行过渡。但是，即使在成熟的过渡诊所中，患者对性和生育问题的认识也缺乏疾病特异性。
尽管越来越意识到为患有复杂泌尿外科疾病的年轻患者提供组织良好和规范的过渡护理非常重要，但这远未得到充分实施。此外，还缺乏专门的、经验丰富的医疗保健提供者，并且资金不足。
