Cernasev Alina, Larson William L, Peden-McAlpine Cynthia, Rockwood Todd, Ranelli Paul L, Okoro Olihe, Schommer Jon C
College of Pharmacy, The University of Tennessee Health Science Center, 301 S Perimeter Park Drive, Suite 220, Nashville, TN 37211, USA.
Allina Health Uptown Clinic, 1221 West Lake St., Suite 201, Minneapolis, MN 55455, USA.
Pharmacy (Basel). 2020 May 30;8(2):92. doi: 10.3390/pharmacy8020092.
Minnesota has seen an increase in the number of immigrants from Africa, notably in the mid-1990s, making up around 2% of Minnesota's total population. This population also faces many impediments that cause important difficulties not only for HIV prevention but also for treatment and care options. The objectives of this study were to capture the experiences of Persons Living with HIV (PLWH) in Minnesota (US) and to elicit their stories about their diagnosis news and what management strategies they use for coping with the stigma associated with the disease. Participants were recruited via fliers in pharmacies, clinics, and HIV service centers located in Minnesota. Recruitment continued until thematic saturation was obtained. Fourteen subjects participated in audio-recorded, semi-structured interviews that were transcribed verbatim into written text. The transcriptions were analyzed using Thematic Analysis. Three themes emerged from the data. Theme 1: Cruel News: "HIV-Oooooo! I wish I was dead", Theme 2: This is My Secret! and Theme 3: "Stigma and HIV are brother and sister". The results demonstrate that stigma is an ever-present problem in African-born PLWH living in the US. Participants perceived the stigma associated with HIV status to affect their lives and culture at individual, familial, and societal levels.
明尼苏达州来自非洲的移民数量有所增加，尤其是在20世纪90年代中期，这部分移民约占明尼苏达州总人口的2%。这一群体还面临许多障碍，这些障碍不仅给艾滋病毒预防工作带来重大困难，也给治疗和护理选择造成了困难。本研究的目的是了解美国明尼苏达州艾滋病毒感染者（PLWH）的经历，并了解他们关于诊断消息的故事，以及他们用于应对与该疾病相关耻辱感的管理策略。通过在明尼苏达州的药店、诊所和艾滋病毒服务中心张贴传单招募参与者。招募工作持续进行，直到达到主题饱和。14名受试者参与了录音的半结构化访谈，访谈内容逐字转录成书面文本。使用主题分析法对转录文本进行分析。数据中出现了三个主题。主题1：残酷的消息：“艾滋病毒——哦！我希望我死了”，主题2：这是我的秘密！以及主题3：“耻辱与艾滋病毒是兄妹”。结果表明，耻辱感是生活在美国的非洲裔艾滋病毒感染者中一个始终存在的问题。参与者认为与艾滋病毒感染状况相关的耻辱感在个人、家庭和社会层面影响着他们的生活和文化。
