Department of Neonatology, Shaare Zedek Medical Center, Jerusalem, Israel.
Faculty of Medicine of the Hebrew University, Jerusalem, Israel.
J Perinatol. 2020 Aug;40(8):1163-1166. doi: 10.1038/s41372-020-0701-6. Epub 2020 Jun 2.
We tested whether mothers of neonates with Down syndrome (DS) prefer to get the diagnosis after delivery in a one-step approach or in a two-step one (information about suggestive findings, followed by additional explicit meeting).
Mothers were asked whether (1) they had been informed in one or two steps; (2) they would have preferred the other approach.
Of 45 women who completed the questionnaires, 18 (40%) had been informed in a one step and 27 (60%) in two steps. Thirteen of the 18 mothers (72.2%) informed in one step were satisfied with the manner they had been informed, while 19 (70.4%) in the two-step group expressed satisfaction.
Mothers were generally satisfied with the method chosen with them. We speculate that an adaptive, supportive, empathic, caring and honest approach, taking into consideration family cultural and religious backgrounds may be able to optimize the delivery of such news.
我们测试了唐氏综合征（DS）新生儿的母亲是否更喜欢在一步法或两步法（提示发现信息，然后再进行额外的明确会议）后获得诊断。
询问母亲们是否（1）以一步或两步的方式获得通知；（2）她们是否更倾向于另一种方式。
在完成问卷调查的 45 位母亲中，18 位（40%）是一步法通知，27 位（60%）是两步法通知。在一步法通知的 18 位母亲中，有 13 位（72.2%）对通知方式感到满意，而在两步法组中，有 19 位（70.4%）表示满意。
母亲们通常对选择的通知方式感到满意。我们推测，一种适应、支持、共情、关心和诚实的方法，考虑到家庭的文化和宗教背景，可能能够优化这种消息的传递。
