Johns Hopkins Sidney Kimmel Comprehensive Cancer Center, Baltimore, MD, USA.
Department of Hematology/Medical Oncology, 89020School of Medicine, Oregon Health & Science University, Portland, OR, USA.
Am J Hosp Palliat Care. 2021 Jun;38(6):671-677. doi: 10.1177/1049909120930205. Epub 2020 Jun 3.
Hospice and Palliative care benefits are infrequently realized by African American patients with cancer. With the increasing recognition of the critical role of early utilization of palliative services for optimal and quality patient care, it is important to acknowledge disparities and barriers to access that minority patients may face. The purpose of this paper is to discuss the status of palliative care delivery for African American patients within the structure and framework of the clinical practice guideline domains established by the National Consensus Project for Palliative Care. This perspectives paper describes the different aspects of palliative care and the interplay with African American culture. Here, we also attempt to identify the multilevel barriers (health care system and provider level) to palliative care among African Americans as a required step toward decreasing the disparities in access, coverage, utilization, and benefit of palliative care. Furthermore, this paper may serve as an educational guide for health care workers who care for African American patients with cancer.
临终关怀和姑息治疗的益处很少能被患有癌症的非裔美国患者实现。随着人们越来越认识到早期利用姑息治疗服务对最佳和高质量患者护理的关键作用,承认少数族裔患者可能面临的获取障碍和差距是很重要的。本文的目的是在国家姑息治疗共识项目确定的临床实践指南领域的结构和框架内,讨论为非裔美国患者提供姑息治疗的现状。本文讨论了姑息治疗的不同方面及其与非裔美国人文化的相互作用。在这里,我们还试图确定非裔美国人获得姑息治疗的多层次障碍(医疗保健系统和提供者层面),这是减少在姑息治疗的可及性、覆盖范围、利用率和获益方面的差距的必要步骤。此外,本文可以作为护理非裔美国癌症患者的医疗保健工作者的教育指南。