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本文引用的文献

1
The Future of Cancer Care in the United States-Overcoming Workforce Capacity Limitations.美国癌症护理的未来——克服劳动力能力限制
JAMA Oncol. 2020 Mar 1;6(3):327-328. doi: 10.1001/jamaoncol.2019.5358.
2
Designing for Accelerated Translation (DART) of Emerging Innovations in Health.新兴健康创新加速翻译设计(DART)
J Clin Transl Sci. 2019 Jun;3(2-3):53-58. doi: 10.1017/cts.2019.386. Epub 2019 Jul 30.
3
Designing a "Thinking System" to Reduce the Human Burden of Care Delivery.设计一个“思维系统”以减轻护理工作中的人力负担。
EGEMS (Wash DC). 2019 Apr 24;7(1):18. doi: 10.5334/egems.299.
4
Current Prevalence of Major Cancer Risk Factors and Screening Test Use in the United States: Disparities by Education and Race/Ethnicity.美国主要癌症风险因素和筛查检测使用的现状:按教育和种族/族裔划分的差异。
Cancer Epidemiol Biomarkers Prev. 2019 Apr;28(4):629-642. doi: 10.1158/1055-9965.EPI-18-1169.
5
A Multi-faceted Intervention Aimed at Black-White Disparities in the Treatment of Early Stage Cancers: The ACCURE Pragmatic Quality Improvement trial.一项针对早期癌症治疗中黑白差异的多方面干预措施:ACCURE实用质量改进试验。
J Natl Med Assoc. 2020 Oct;112(5):468-477. doi: 10.1016/j.jnma.2019.03.001. Epub 2019 Mar 28.
6
Implementing personalized pathways for cancer follow-up care in the United States: Proceedings from an American Cancer Society-American Society of Clinical Oncology summit.美国实施癌症随访护理的个性化路径:美国癌症协会-美国临床肿瘤学会峰会会议记录。
CA Cancer J Clin. 2019 May;69(3):234-247. doi: 10.3322/caac.21558. Epub 2019 Mar 8.
7
Equitably improving outcomes for cancer survivors and supporting caregivers: A blueprint for care delivery, research, education, and policy.公平改善癌症幸存者的结局并为照护者提供支持:提供护理、研究、教育和政策的蓝图。
CA Cancer J Clin. 2019 Jan;69(1):35-49. doi: 10.3322/caac.21548. Epub 2018 Oct 30.
8
Moving beyond static survivorship care plans: A systems engineering approach to population health management for cancer survivors.超越静态生存护理计划:癌症幸存者人群健康管理的系统工程方法。
Cancer. 2018 Nov 15;124(22):4292-4300. doi: 10.1002/cncr.31546. Epub 2018 Sep 12.
9
Overall Survival Results of a Trial Assessing Patient-Reported Outcomes for Symptom Monitoring During Routine Cancer Treatment.一项评估常规癌症治疗期间症状监测的患者报告结局的试验的总生存结果。
JAMA. 2017 Jul 11;318(2):197-198. doi: 10.1001/jama.2017.7156.
10
Trends and Patterns of Disparities in Cancer Mortality Among US Counties, 1980-2014.1980 - 2014年美国各县癌症死亡率差异的趋势与模式
JAMA. 2017 Jan 24;317(4):388-406. doi: 10.1001/jama.2016.20324.

弥合癌症护理中的脱节:为研究、实践和政策制定议程。

Mending Disconnects in Cancer Care: Setting an Agenda for Research, Practice, and Policy.

机构信息

American Cancer Society, Washington, DC.

National Cancer Institute, Bethesda, MD.

出版信息

JCO Clin Cancer Inform. 2020 Jun;4:539-546. doi: 10.1200/CCI.20.00046.

DOI:10.1200/CCI.20.00046
PMID:32543897
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7328120/
Abstract

Cancer in the United States accounts for $600 billion in health care costs, lost work time and productivity, reduced quality of life, and premature mortality. The future of oncology delivery must mend disconnects to equitably improve patient outcomes while constraining costs and burden on patients, caregivers, and care teams. Embedding learning health systems into oncology can connect care, engaging patients and providers in fully interoperable data systems that remotely monitor patients; generate predictive and prescriptive analytics to facilitate appropriate, timely referrals; and extend the reach of clinicians beyond clinic walls. Incorporating functional learning systems into the future of oncology and follow-up care requires coordinated national attention to 4 synergistic strategies: (1) galvanize and shape public discourse to develop and adopt these systems, (2) demonstrate their value, (3) test and evaluate their use, and (4) reform policy to incentivize and regulate their use.

摘要

在美国,癌症导致的医疗保健成本、工作时间和生产力损失、生活质量下降以及过早死亡等问题耗费了 6000 亿美元。肿瘤学治疗的未来必须弥合脱节,在控制成本和患者负担的同时,公平地改善患者的预后。将学习型医疗系统嵌入肿瘤学领域可以将护理联系起来,让患者和提供者参与到完全可互操作的数据系统中,该系统可以远程监测患者;生成预测和规定性分析,以促进适当、及时的转介;并将临床医生的工作范围扩展到诊所之外。在肿瘤学和后续护理的未来中纳入功能学习系统需要协调国家层面的注意力,以实现以下 4 个协同策略:(1)激发并塑造公众舆论,以开发和采用这些系统;(2)展示其价值;(3)测试和评估其使用;(4)改革政策以激励和规范其使用。