Opsomer Sophie, De Lepeleire Jan, Lauwerier Emelien, Pype Peter
KU Leuven.
Ghent University.
Br J Gen Pract. 2020 Jun;70(suppl 1). doi: 10.3399/bjgp20X711041.
Family caregivers of advanced cancer patients are at risk for developing mental disorders. Despite this risk, the majority seem to adapt well, and throughout the caregiving period, their trajectory is characterised by healthy functioning. However, GPs struggle with making timely assessments of caregivers at risk for mental dysfunction, since they often fail to seek medical help for themselves and the appropriate research about resilience in cancer caregivers is scarce. Moreover, research is hampered by the lack of a universal definition or theoretical framework.
To propose a comprehensive definition and framework for further research in family caregiving for advanced cancer patients.
Inspired by the hermeneutic methodology, reviews and concept analyses on resilience following a potentially traumatic event were searched and analysed. Conforming to the hermeneutic methodology, article collection from PubMed, EMBASE, CINAHL, and PsycInfo was followed by analysis and was stopped when saturation was reached. Elements consistently arising from the definitions of resilience were listed and the theoretical frameworks were compared.
The APA definition: '' and Bonanno's framework '' are proposed.
There is a need for studies on resilience in caregivers of advanced cancer patients. Resilience is context-dependent, hence, study results cannot be transferred as such from one clinical situation to another. Furthermore, conceptual ambiguities hinder the interpretation and comparison of study results. For further research on resilience in caregivers of advanced cancer patients, we suggest the APA definition of resilience and Bonanno's framework.
晚期癌症患者的家庭照顾者有患精神障碍的风险。尽管存在这种风险，但大多数人似乎适应良好，并且在整个照顾期间，他们的轨迹以健康的功能为特征。然而，全科医生难以对有精神功能障碍风险的照顾者进行及时评估，因为他们往往不主动寻求医疗帮助，而且关于癌症照顾者复原力的适当研究也很匮乏。此外，由于缺乏通用的定义或理论框架，研究受到了阻碍。
为晚期癌症患者家庭照顾的进一步研究提出一个全面的定义和框架。
受诠释学方法的启发，检索并分析了关于潜在创伤事件后复原力的综述和概念分析。按照诠释学方法，从PubMed、EMBASE、CINAHL和PsycInfo收集文章，随后进行分析，当达到饱和时停止。列出复原力定义中一致出现的要素，并比较理论框架。
提出了美国心理学会的定义和博南诺的框架。
需要对晚期癌症患者照顾者的复原力进行研究。复原力取决于具体情境，因此，研究结果不能直接从一种临床情况转移到另一种临床情况。此外，概念上的模糊性阻碍了研究结果的解释和比较。对于晚期癌症患者照顾者复原力的进一步研究，我们建议采用美国心理学会对复原力的定义和博南诺的框架。
