Department and Clinic of Psychiatry, Pomeranian Medical University, Szczecin, Poland.
Department of Social Medicine and Public Health, Pomeranian Medical University, Szczecin, Poland.
Int J Lang Commun Disord. 2020 Sep;55(5):661-677. doi: 10.1111/1460-6984.12551. Epub 2020 Jun 18.
There is a wide agreement that family and friends of people with aphasia (PWA) can play a crucial role in the rehabilitation of interpersonal communication. Therefore, speech and language therapists (SLTs) should include family and friends in the process of therapy. However, little has been said about the role of caregivers of severely disabled PWA in the rehabilitation of communication functions.
To examine how caregivers of severely disabled PWA perceive their relationship and communication with PWA, how they facilitate communication with PWA, and whether the caregiver's personality and emotional intelligence modify the abovementioned processes.
METHODS & PROCEDURES: The study involved 123 caregivers of severely disabled stroke survivors with aphasia. Participants took part in a structured interview based on a structured interview guide created for the purpose of this study. The standardized psychological questionnaires NEO Five-Factor Inventory (NEO-FFI) and Schutte Emotional Intelligence Scale (SEIS) were used.
OUTCOMES & RESULTS: The caregiver's positive attitude towards the PWA correlated with the active facilitation of communication. The personality traits of caregivers and their level of emotional intelligence were associated with the tendency to use certain techniques to facilitate communication with PWA.
CONCLUSIONS & IMPLICATIONS: Caregivers' positive attitude towards PWA is beneficial for the rehabilitation of communicative functions. Personality traits and emotional intelligence could modify the caregiver's strategy of coping with aphasia-related challenges and should be taken into consideration when providing support. What this paper adds What is already known on the subject Interpersonal communication must by definition involve at least two people. Therefore, there are a lot of approaches in SLT where support is given not only to the PWA but also to the communication partners. The most important group is significant others, which is usually understood as family members and friends. There is an increasing recognition that SLTs should include them in therapy. What this paper adds to existing knowledge For those PWA who need constant care, caregivers may have a significant influence on the quality of communication. Their positive attitude towards PWA corresponds with more active facilitation of communication and can make rehabilitation more efficacious. Caregivers should be educated on the cognitive and behavioural aspects of aphasia and encouraged to look actively for a PWA's positive characteristics. Caregivers' personality traits play a role in facilitating communication. For example, caregivers with high agreeableness are more likely to enjoy providing care, while those with higher conscientiousness declare using more techniques to facilitate communication with the PWA. What are the potential or actual clinical implications of this work? Caregivers' personality traits play a role in caring. Their positive attitude towards PWA corresponds to more active facilitation of communication, which can lead to more effective rehabilitation. This should be taken into account when training caregivers. Training programmes should include cognitive and behavioural aspects of aphasia as well as emphasize the need to maximize the PWA's abilities.
人们普遍认为,失语症患者的家人和朋友可以在人际沟通康复中发挥关键作用。因此,言语治疗师(SLT)应该将家人和朋友纳入治疗过程中。然而,对于严重残疾的失语症患者的照顾者在沟通功能康复中的作用,却很少有人提及。
探讨严重残疾的失语症患者的照顾者如何看待他们与患者的关系和沟通,他们如何促进与患者的沟通,以及照顾者的个性和情绪智力是否会改变上述过程。
该研究涉及 123 名严重残疾的中风后失语症患者的照顾者。参与者参加了基于为此研究创建的结构化访谈指南的结构化访谈。使用了标准化的心理问卷 NEO 五因素人格问卷(NEO-FFI)和舒特情绪智力量表(SEIS)。
照顾者对患者的积极态度与积极促进沟通相关。照顾者的个性特征和情绪智力水平与他们使用某些技术促进与患者沟通的倾向有关。
照顾者对患者的积极态度有利于康复沟通功能。个性特征和情绪智力可以改变照顾者应对与失语症相关挑战的策略,在提供支持时应考虑这些因素。
本文的新增内容
关于该主题的已知内容
人际沟通必须至少涉及两个人,因此在 SLT 中有很多方法,不仅为患者提供支持,也为沟通伙伴提供支持。最重要的群体是重要他人,通常理解为家庭成员和朋友。越来越多的人认识到,SLT 应该将他们纳入治疗。
本文在现有知识方面的新增内容
对于那些需要持续护理的患者来说,照顾者可能会对沟通质量产生重大影响。他们对患者的积极态度与更积极地促进沟通相对应,并且可以使康复更有效。应该对照顾者进行失语症认知和行为方面的教育,并鼓励他们积极寻找患者的积极特征。照顾者的个性特征在促进沟通方面发挥作用。例如,具有较高宜人性的照顾者更愿意提供照顾,而具有较高尽责性的照顾者则更有可能声明使用更多技术来促进与患者的沟通。
这方面的工作有哪些潜在或实际的临床意义?
照顾者的个性特征在照顾方面发挥作用。他们对患者的积极态度与更积极地促进沟通相对应,这可以导致更有效的康复。在培训照顾者时应考虑到这一点。培训计划应包括失语症的认知和行为方面,并强调需要最大限度地发挥患者的能力。