University of Missouri - Kansas City, Kansas City, MO, 64110, USA.
Department of Population Health, University of Kansas School of Medicine, 3901 Rainbow Blvd., MS 1008, Kansas City, MO, 66160, USA.
J Cancer Educ. 2022 Apr;37(2):274-279. doi: 10.1007/s13187-020-01807-0.
Limited women's health and cancer prevention materials are available that have been validated for vulnerable populations. Such materials are especially important for groups, which have intermittent and typically low-quality healthcare access and are at greatest risk for missing out on women's health and cancer prevention screening. Health education materials are developed from heterogeneous sources. Clinical and research teams have minimal guidance in terms of sources, timelines, outputs, and evaluation in the development of such materials. The goal of this paper is to share our process in developing and evaluating an up-to-date women's health and cancer prevention learning guide appropriate for a target population of women involved in the criminal justice system. A ten-page learning guide was drafted using the current evidence-based data, with the objective of providing educational material on four topics: cervical cancer, breast cancer, sexually transmitted infection, and unintended pregnancy prevention. The learning guide was then tested on a convenience sample of 33 women at a local county jail. Feedback was organized into three parts in which the participants Responded to open-ended question, "What is missing?" Rated each of the four topics for design and content Completed a usability assessment Common themes were participants' interest in learning about side effects of birth control and wanting more information on testing and treatment, specifically for sexually transmitted infections (STIs). Women were satisfied with the cancer prevention information presented to them. This report provides a framework for cancer prevention researchers who are developing health education materials for vulnerable populations.
现有的针对弱势群体的女性健康和癌症预防材料十分有限。对于那些间歇性、通常医疗质量较差、最容易错过女性健康和癌症预防筛查的群体来说，这些材料尤为重要。健康教育材料是由各种来源开发的。在开发此类材料方面，临床和研究团队在来源、时间安排、产出和评估方面几乎没有指导。本文的目的是分享我们为参与刑事司法系统的目标人群开发和评估最新的女性健康和癌症预防学习指南的过程。使用当前的循证数据起草了一份十页的学习指南，旨在提供关于四个主题的教育材料：宫颈癌、乳腺癌、性传播感染和意外怀孕预防。然后，该学习指南在当地县监狱的 33 名女性中进行了测试。反馈信息分为三部分，参与者对开放式问题“缺少什么？”做出了回应，对四个主题的设计和内容进行了评分，并完成了可用性评估。共同主题是参与者对学习避孕副作用的兴趣，以及希望获得更多关于性传播感染（STI）测试和治疗的信息。女性对提供给她们的癌症预防信息感到满意。本报告为正在为弱势群体开发健康教育材料的癌症预防研究人员提供了一个框架。
