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数字时代的悲伤情绪:绘制在线悲伤与丧亲支持图谱。

Grieving in the digital era: Mapping online support for grief and bereavement.

作者信息

Beaunoyer Elisabeth, Hiracheta Torres Lisandro, Maessen Lenn, Guitton Matthieu J

机构信息

Faculty of Medicine, Université Laval, Quebec City, QC, Canada; Faculty of Nursing, Université Laval, Quebec City, QC, Canada; CERVO Brain Research Center, Quebec City, QC, Canada.

Faculty of Medicine, Universidad Autonoma de Nuevo Leon, Monterrey, Mexico.

出版信息

Patient Educ Couns. 2020 Jun 13. doi: 10.1016/j.pec.2020.06.013.

Abstract

OBJECTIVE

To describe the landscape of digital resources available for grief and bereavement, and to explore cultural variations through the analysis of patterns in three languages with a multinational repartition (English, French and Spanish).

METHODS

For each language, websites were collected through a systematized approach and classified according to their category (governmental, health, educational, social media, conventional media, spiritual), their country of origin, and the type of support they offered (practical support, services, peer support, informational support, resources).

RESULTS

A total of 2587 websites (English: 1003; French 678; Spanish: 906) were analyzed. Cultural variations were observed both for the websites' categories and the types of support. Half of the websites presented at least one type of support, informational support being the most prevalent, followed by practical support. English websites presented significantly more support than Spanish websites, with French websites in between.

PRACTICE IMPLICATIONS

By using an extensive survey, our results allow for a general mapping of online websites that is comparable across languages, but also unveil digital dynamics unknown to date. These results further the multicultural understanding of digital support for grief and bereavement, propose an innovative and operational typology for online support and raise awareness of the current support landscape.

摘要

目的

描述可用于悲伤和丧亲之痛的数字资源状况,并通过分析具有跨国分布的三种语言(英语、法语和西班牙语)的模式来探索文化差异。

方法

针对每种语言,通过系统化方法收集网站,并根据其类别(政府、健康、教育、社交媒体、传统媒体、精神)、原产国以及提供的支持类型(实际支持、服务、同伴支持、信息支持、资源)进行分类。

结果

共分析了2587个网站(英语:1003个;法语:678个;西班牙语:906个)。在网站类别和支持类型方面均观察到了文化差异。一半的网站提供了至少一种支持类型,信息支持最为普遍,其次是实际支持。英语网站提供的支持明显多于西班牙语网站,法语网站则介于两者之间。

实践意义

通过广泛的调查,我们的结果实现了跨语言可比的在线网站总体映射,同时也揭示了迄今为止未知的数字动态。这些结果深化了对悲伤和丧亲之痛数字支持的多元文化理解,提出了一种创新且实用的在线支持类型,并提高了对当前支持状况的认识。

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