Collins Andrew, Ayre Sandy, Brulotte Tiffany, Crowe Kim, Nekolaichuk Cheryl
Division of Palliative Care Medicine, Department of Oncology, University of Alberta, Edmonton, Canada.
Tertiary Palliative Care Unit, Grey Nuns Community Hospital, Edmonton, Alberta, Canada.
Am J Hosp Palliat Care. 2021 Mar;38(3):266-275. doi: 10.1177/1049909120935833. Epub 2020 Jun 29.
Clinical use of the creative arts in palliative care is well established, yet there are few evaluation studies of these programs.
In this first phase of a 3-phase evaluation of a creative arts program entitled "Tile Tales," we conducted a retrospective thematic analysis of 85 painted tiles and accompanying stories that were publically displayed on a tertiary palliative care unit. Each story was independently coded, using content analysis. Themes were derived through consensus, using the constant comparative method.
Tiles were created by staff (n = 36, 42%), family (n = 32, 38%), patients (n = 9, 11%), or patients and family (n = 8, 9%). Six major themes emerged from the artwork: "Spirituality," "Relationships," "Journey," "Story," "Symbolism," and "Paradox."
These results illustrate how the creative arts can support the expression of diverse palliative care experiences, for patients, their families and palliative care staff, when words alone may not suffice.
创意艺术在姑息治疗中的临床应用已得到充分确立,但对这些项目的评估研究却很少。
在一项名为“瓷砖故事”的创意艺术项目的三阶段评估的第一阶段,我们对在一家三级姑息治疗病房公开展示的85块彩绘瓷砖及附带故事进行了回顾性主题分析。每个故事都采用内容分析法进行独立编码。主题通过共识,使用持续比较法得出。
瓷砖由工作人员(n = 36,42%)、家属(n = 32,38%)、患者(n = 9,11%)或患者与家属共同创作(n = 8,9%)。从这些艺术作品中出现了六个主要主题:“灵性”“人际关系”“旅程”“故事”“象征意义”和“悖论”。
这些结果说明了当仅靠言语可能不够时,创意艺术如何能够支持患者、其家属和姑息治疗工作人员表达各种姑息治疗经历。