Faculdade de Filosofia, Ciências e Letras de Ribeirão Preto, Departamento de Psicologia, Universidade de São Paulo, Ribeirão Preto, São Paulo, Brazil.
Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.
Eur J Cancer Care (Engl). 2021 Jul;30(4):e13424. doi: 10.1111/ecc.13424. Epub 2021 Feb 5.
Spirituality is a multidimensional aspect of human experience. In the context of palliative care, it is an individual resource that can be used to cope with illness and to assign new meanings to suffering. Qualitative studies that aim to investigate the experience of spirituality and the needs of family caregivers in this context are rare.
This meta-synthesis aimed to synthesise qualitative studies on the experience of spirituality in family caregivers of adult and elderly cancer patients receiving palliative care.
A systematic review was performed in six databases, and 14 studies were included in this meta-synthesis.
The results are presented as a thematic synthesis divided into two analytical themes: (1) The interweaving of spirituality with end-of-life care and (2) The dimensions of suffering and spirituality in the dying process of the loved one. Each analytical theme is explained by two descriptive themes. The results showed that family caregivers express their spirituality in a multidimensional way, giving meaning to the care provided and reassessing the meanings of their lives and their suffering.
Investigating the suffering and spiritual needs of family members in this context may be of value to inform comprehensive and multi-professional psychosocial care.
灵性是人类体验的一个多维度方面。在姑息治疗的背景下，它是一种个体资源，可以用来应对疾病，并为痛苦赋予新的意义。旨在调查灵性体验和家庭照顾者在这方面需求的定性研究很少。
本荟萃分析旨在综合成年和老年癌症患者姑息治疗家庭照顾者的灵性体验的定性研究。
在六个数据库中进行了系统评价，纳入了 14 项研究进行荟萃分析。
结果以主题综合的形式呈现，分为两个分析主题：（1）灵性与临终关怀的交织；（2）所爱之人临终过程中的痛苦和灵性维度。每个分析主题都由两个描述性主题解释。结果表明，家庭照顾者以多维的方式表达他们的灵性，赋予他们提供的照顾以意义，并重新评估他们的生活和痛苦的意义。
在这种情况下调查家庭成员的痛苦和精神需求可能有助于提供全面和多专业的社会心理关怀。
