Drury Amanda, Payne Sheila, Brady Anne-Marie
School of Nursing, Midwifery and Health Systems, University College Dublin, Dublin, D04 V1W8, Ireland
School of Nursing and Midwifery, Trinity College Dublin, Dublin, Dublin 2, Ireland.
BMJ Support Palliat Care. 2020 Jun 29. doi: 10.1136/bmjspcare-2020-002190.
Cancer survivors' perceptions of healthcare have been identified as a predictor of quality of life (QoL) outcomes. This study aims to explore colorectal cancer (CRC) survivors' perceptions of how cancer-related healthcare affects their QoL.
Semistructured interviews were conducted with 22 CRC survivors receiving follow-up care between 1 and 5 years post diagnosis. Interviews were recorded, transcribed and analysed thematically.
Five themes described the impact of healthcare experiences on CRC survivors' QoL. While cancer survivors spoke positively of their , many experienced a range of . Participants described a range of positive and negative experiences, as and had implications for their QoL. Where negative healthcare events aligned, survivors' autonomy, dignity and confidence were undermined, and survivorship issues could be inadequately addressed. To address persistent unmet needs, survivors developed a with varying outcomes.
Cancer survivors' experience of follow-up and healthcare can positively or negatively affect their QoL. Preparation for cancer survivorship must be incorporated into the acute phase of diagnosis and treatment and interlinked with clear pathways of survivorship care and accessible supportive care, which support survivors to be equal partners in their healthcare. Understanding cancer survivors' knowledge, expertise and mastery of their condition is essential to ensure delivery of person-centred supportive care that adequately addresses the survivor's unmet needs.
癌症幸存者对医疗保健的认知已被确定为生活质量（QoL）结果的一个预测指标。本研究旨在探讨结直肠癌（CRC）幸存者对癌症相关医疗保健如何影响其生活质量的认知。
对22名在诊断后1至5年接受随访护理的CRC幸存者进行了半结构式访谈。访谈进行了录音、转录并进行了主题分析。
五个主题描述了医疗保健经历对CRC幸存者生活质量的影响。虽然癌症幸存者对他们的……给予了积极评价，但许多人经历了一系列的……。参与者描述了一系列积极和消极的经历，因为……和……对他们的生活质量有影响。当负面医疗事件同时出现时，幸存者的自主权、尊严和信心受到损害，而 survivorship 问题可能得不到充分解决。为了满足持续未得到满足的需求，幸存者制定了一个……，结果各不相同。
癌症幸存者的随访和医疗保健经历可能对其生活质量产生积极或消极影响。癌症 survivorship 的准备工作必须纳入诊断和治疗的急性期，并与明确的 survivorship 护理途径和可获得的支持性护理相联系，这有助于幸存者成为其医疗保健的平等伙伴。了解癌症幸存者对其病情的知识、专业技能和掌握程度对于确保提供以患者为中心的支持性护理至关重要，这种护理能够充分满足幸存者未得到满足的需求。
