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多发性硬化症患者的系统使用模式与基于网络的远程康复影响之间的关联

Association Between System Usage Pattern and Impact of Web-Based Telerehabilitation in Patients with Multiple Sclerosis.

作者信息

Jeong In Cheol, Liu Jiazhen, Finkelstein Joseph

机构信息

Icahn School of Medicine at Mount Sinai, New York, NY, USA.

出版信息

Stud Health Technol Inform. 2020 Jun 26;272:346-349. doi: 10.3233/SHTI200566.

Abstract

Patients with multiple sclerosis (PwMS) increasingly use online services for managing their healthcare. The objective of this study was to investigate web log data (weblogs) generated by PwMS in the process of web-based telerehabilitation and correlate them with rehabilitation progress. The weblogs from 17 patients (female: 15, male 2; mean age: 60.1±11.4 years) were tracked for an average period of 153.6±38.3 days with the total number of log events and page visit records of 1,457 and 37,030, respectively. The time and frequency of patients' web visits were investigated as well as their adherence to prescribed exercise regimen. Rehabilitation progress was gauged by changes in quality of life, mobility, and sleep ascertained by measuring MSQOL, 2MWT and PSQI respectively. The changes in these metrics were correlated with system usage patterns. On average, PwMS visited 30 pages a day for 26.5 minutes, with a single login amounting for 27 pages in duration of 22.0 minutes. The average exercise program comprised 6.9 sets and 29.1 repetitions with average set and repetition completion rates of 46.5% and 72.6% respectively. A statistically significant association has been found between time spent in the online exercise mode and clinical improvements. The results of the study demonstrate that the patients had more pronounced outcome improvements when they increased the time of using the telerehabilitation system for home-based exercise. The results of this study could contribute to the development of more efficient home-based telerehabilitation systems.

摘要

多发性硬化症患者(PwMS)越来越多地使用在线服务来管理他们的医疗保健。本研究的目的是调查PwMS在基于网络的远程康复过程中生成的网络日志数据(网络日志),并将它们与康复进展相关联。对17名患者(女性15名,男性2名;平均年龄:60.1±11.4岁)的网络日志进行了平均153.6±38.3天的跟踪,日志事件总数和页面访问记录分别为1457和37030。调查了患者的网络访问时间和频率以及他们对规定锻炼方案的依从性。通过分别测量MSQOL、2MWT和PSQI确定的生活质量、 mobility和睡眠变化来衡量康复进展。这些指标的变化与系统使用模式相关联。平均而言,PwMS每天访问30个页面,时长26.5分钟,单次登录平均访问27个页面,时长为·22.0分钟。平均锻炼计划包括6.9组和29.1次重复,平均组和重复完成率分别为46.5%和72.6%。在在线锻炼模式下花费的时间与临床改善之间发现了统计学上的显著关联。研究结果表明,当患者增加使用远程康复系统进行家庭锻炼的时间时,他们的结果改善更为明显。本研究结果有助于开发更高效的家庭远程康复系统。

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