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炎症性肠病的过渡期护理:日本儿科胃肠病学家的调查。

Transitional care for inflammatory bowel disease: A survey of Japanese pediatric gastroenterologists.

机构信息

Department of Pediatrics, Jichi Medical University, Shimotsuke City, Tochigi, Japan.

Department of Pediatrics and Adolescent Medicine, Juntendo University Graduate School of Medicine, Bunkyo, Tokyo, Japan.

出版信息

Pediatr Int. 2021 Jan;63(1):65-71. doi: 10.1111/ped.14376. Epub 2021 Jan 9.

DOI:10.1111/ped.14376
PMID:32621773
Abstract

BACKGROUND

In 2019 we reported the results of a Japanese national survey designed to explore the views of adult gastroenterologists regarding transitional care for patients with childhood-onset inflammatory bowel disease (IBD). For the present study, we conducted a similar survey of pediatric gastroenterologists to compare the views of the two sets of specialists.

METHODS

The survey conducted in 2019 involved 48 representative members of the Japanese Society for Pediatric Gastroenterology, Hepatology and Nutrition. They were contacted by conventional mail and their answers were not anonymized. Respondents who had already referred patients with IBD to adult gastroenterologists were asked in a questionnaire to rank the importance of specific statements on a Likert scale.

RESULTS

The response rate was 79% and 29 (60%) of the respondents had experienced transitional care for patients with IBD. Transfer to adult care was considered by 90% of the respondents to be the ideal form of medical care for adolescents/young adults with IBD. However, 59% of the respondents had experienced some degree of difficulty when making referrals for such care. The majority of pediatric gastroenterologists considered that the ideal age for transfer was 18-22 years. Among the respondents, physicians at municipal hospitals considered that the presence of diseases other than IBD and a shortage of manpower were significantly more important issues than other practice settings.

CONCLUSIONS

The present survey revealed that the general views regarding transitional care for IBD between pediatric and adult gastroenterologists were similar, except for the appropriate time for transfer. The results underline the importance of preparing a transition program appropriate to practice settings.

摘要

背景

2019 年,我们报告了一项日本全国性调查的结果,该调查旨在探讨成人胃肠病学家对儿童期发病的炎症性肠病(IBD)患者过渡护理的看法。在本研究中,我们对儿科胃肠病学家进行了类似的调查,以比较两组专家的观点。

方法

2019 年进行的调查涉及日本小儿胃肠病、肝病和营养学会的 48 名代表性成员。他们通过普通邮件联系,并保留了他们的匿名回答。在问卷调查中,已经将 IBD 患者转介给成人胃肠病学家的受访者被要求根据李克特量表对特定陈述的重要性进行排名。

结果

应答率为 79%,29 名(60%)受访者有过 IBD 患者的过渡护理经验。90%的受访者认为将青少年/年轻成人的 IBD 转至成人护理是理想的医疗形式。然而,59%的受访者在进行此类转介时遇到了一定程度的困难。大多数儿科胃肠病学家认为,转介的理想年龄是 18-22 岁。在受访者中,市立医院的医生认为,除 IBD 以外的疾病和人力短缺比其他实践环境更为重要。

结论

本调查显示,儿科和成人胃肠病学家对 IBD 过渡护理的总体看法相似,除了转介的适当时间。结果强调了制定适合实践环境的过渡计划的重要性。

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