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关于儿童发病炎症性肠病患者医疗保健过渡的共识声明。

A consensus statement on health-care transition for childhood-onset inflammatory bowel disease patients.

机构信息

Department of Pediatrics, Jichi Medical University, Shimotsuke, Tochigi, Japan.

Department of Pediatrics, Faculty of Medicine, Juntendo University, Bunkyo-ku, Tokyo, Japan.

出版信息

Pediatr Int. 2022 Jan;64(1):e15241. doi: 10.1111/ped.15241.

DOI:10.1111/ped.15241
PMID:35895501
Abstract

Inflammatory bowel disease (IBD) is a chronic relapsing inflammatory disorder of the intestine. The incidence of IBD is increasing worldwide, including Japan, and in approximately 25% of all affected patients it is diagnosed before 18 years of age. For the health maintenance of such patients, planned transition to adult care systems is essential. Previous Japanese surveys have revealed gaps between adult and pediatric gastroenterologists with regard to their knowledge and perception of health-care transition for patients with childhood-onset IBD. In 2021-2022, several Web workshops to discuss issues related to the transitional care of IBD patients were held by the Ministry of Health, Labour and Welfare of Japan as part of their program for research on intractable diseases. Clinicians experienced in IBD treatment for pediatric and adult patients participated. As a result, this panel of adult and pediatric gastroenterologists developed five consensus statements on the issue of "transfer from pediatric to adult care" and nine statements on the issue of "addressing transitional care (transition program)." To address current gaps in health-care transition for childhood-onset IBD patients, a programmed approach to transition, and better partnerships between pediatric and adult gastroenterologists are indicated. It is hoped that this consensus statement will provide a basis for the development of appropriate guidelines for clinical practice.

摘要

炎症性肠病(IBD)是一种慢性复发性肠道炎症性疾病。IBD 的发病率在全球范围内呈上升趋势,包括日本,在所有受影响的患者中,约有 25%在 18 岁之前被诊断出来。为了维持这些患者的健康,计划向成人护理系统过渡至关重要。以前的日本调查显示,儿科和成人胃肠病学家在儿童期发病的 IBD 患者的医疗保健过渡方面的知识和认知存在差距。2021-2022 年,日本厚生劳动省作为其难治性疾病研究计划的一部分,举办了几次网络研讨会,讨论与 IBD 患者过渡护理相关的问题。有经验的儿科和成人 IBD 治疗临床医生参加了会议。因此,该成人和儿科胃肠病学家小组就“从儿科向成人护理的转移”问题达成了五项共识声明,并就“解决过渡护理(过渡计划)”问题达成了九条声明。为了解决儿童期发病的 IBD 患者医疗保健过渡方面的当前差距,需要有计划地进行过渡,并加强儿科和成人胃肠病学家之间的伙伴关系。希望本共识声明将为制定适当的临床实践指南提供基础。

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引用本文的文献

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Transitioning Pediatric Patients with Inflammatory Bowel Disease: Key Considerations for Adult Gastroenterologists.炎症性肠病儿科患者的转诊:成人胃肠病学家的关键考量因素
Pediatr Gastroenterol Hepatol Nutr. 2025 May;28(3):141-147. doi: 10.5223/pghn.2025.28.3.141. Epub 2025 May 8.
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Pediatric to Adult Transition in Inflammatory Bowel Disease: Consensus Guidelines for Australia and New Zealand.炎症性肠病从儿科到成人的过渡:澳大利亚和新西兰共识指南
Inflamm Bowel Dis. 2025 Feb 6;31(2):563-578. doi: 10.1093/ibd/izae087.
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Hungarian Linguistic, Cross-Cultural and Age Adaptation of Transition Specific Questionnaires in Patients with Inflammatory Bowel Disease.
炎症性肠病患者过渡特定问卷的匈牙利语语言、跨文化和年龄适应性研究
Children (Basel). 2023 Apr 12;10(4):711. doi: 10.3390/children10040711.
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Pediatric Sleep-Disordered Breathing and Long-Term Complications: Clinical and Health Implications.小儿睡眠呼吸障碍与长期并发症:临床及健康影响
J Clin Med. 2022 Sep 1;11(17):5178. doi: 10.3390/jcm11175178.